@MarieDicken 

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MarieDicken

Holidays in Cornwall

I am currently in Cornwall holidaying with my daughter her husband and 2kids and their staffy. My husband who I could not do without decided to rent a large house near st. Austtell it is utter mayhem and I who cannot walk and are in constant pain just sit here and watch them enjoy playing games and realise just how much MS has robbed me of a life I should be enjoying I blame my neorolgist he has never gave me ms drugs to slow it progress. When now in retirement and very comfortable we both worked all our lives for this, my next appointment is in September and will use some of the money we have put by if he does not help this time I will go private, has anyone else gone private, and while they enjoy themselves I will go to bed.
@Stumbler

@mariedicken , your post really resonates with me. MS is a robbing b*****d! But, it is what it is. It could always have been something worse, so we have to count our chickens and and try to make the best out of a bad job. Do you have a wheelchair or mobility Scooter with you in Cornwall? If not, perhaps you could hire one. It might enable you to be a bit more involved. With reference to going private, it would get you a quicker appointment and the Consultant would spend more time with you. It all depends on what you want and whether it is available to you. You are entitled to a second opinion, with a consultant of your choice at another hospital. Would that help?

@MarieDicken

Hi Stumbler, yes I have scooter and and today had a lovely day visiting Newquay the weather was hit and miss but the kids loved it so I loved it, but now where home I’m shattered so early bed ready for tomorrow Thanks Marie