@Shazta_Murphy 

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Shazta_Murphy

Hello

Hey there, hope your having a fantastic day! 37 female diagnosed 2001 never gave it another thought. This past August it side kicked me and I couldn’t feel my legs for over 3weeks, felt like I was getting my sea legs and over anxious about it. I had a lot of stresses added all at once and I couldn’t take it! Landed in the hospital! It was a bad “flare” and now I know for all these years I wasn’t crazy, it was a inconvenience I felt about 3to 4times a year. Passing out and falling for no reason, running into corners of walls, angry, head in space, body confused on earth. Sorry for the long wind, but I have 17 plus years of this controlling my life. I joke that I don’t cry, but it’s a real problem, my tears are broken. I finally have a neurologist appointment in December so I can start dealing with this and form a relationship for life. Btw I’m married and have 3 children. 20,17,15 boy howdy am I glad I had them when I could deal with symptoms. Anywho I’m going to discuss treatment with my neurologist... I’m scared! I have self medicated natural remedies for so long, it helped me get by... now I feel like a pill diet is my new normal and possibly infusion or shots! Did I mention I don’t do well with doctors, my anxiety sky rockets and I forget everything I’m there for in the first place. I feel so alone physically and emotionally. I’m a freaking warrior and I need something to keep me that way! Any tips for sanity? I give up fighting the pain, I feel as I have grown to used to it and started petting the biting dog so to speak. Alright now you... yes you, know more about me than most so hi thank you for reading my babbling 😊
@PeterFrancis

Hi @shazta_murphy The only advice I can give for keeping sane is to carry on as normal, stick with doing what your body allows you to do. If not possible then see if there is a different way of carrying on doing what you do, if not then find other interests, try something new and different.

@Shazta_Murphy

Thank you for responding. I definitely am trying to live as normal as possible. I paint when my hands work, and craft when my mind is focused. It’s getting cold where I live and insanity is on the horizon. I will be indoors until spring, the cold hurts to the bone and everything else escapes my control. Lol spastic day... it’s more like a flea on crack day hahaha