I’m so gutted. Got a text from my MS nurse on Friday telling me to stop taking Gilenya immediately. My lymphocytes have been at 0.2 or below since before Xmas. Blood test on Weds last week showed them at 0.15. I’m so disappointed because although I’ve had a few weird symptoms, I’ve felt so much better in myself since starting Gilenya than I ever did on Tecfidera, and now I’ve got to venture into the unknown again and try something new. Anyone else moved from Gilenya because of super low lymphocyte levels? What did you move to? What are your experiences? Tell me sonething that will make me feel better!
Last reply 4 months ago
Gilenya stopped :-(