Last reply 4 months ago
gastroparesis!? Stomach issues

I have had nausea for months. I have lost so much weight and spend many days in bed. I have been to multiple dr. appts for this and have received no help at all. Dr. Google. I hate to admit it but what else can you do when you are desperate……….. So, I guess some people with MS have delayed gastric emptying otherwise known as gastroparesis. So this is my working hypothesis. Just trying to incorporate some lifestyle changes, and it seems to be starting to help. Has anyone else dealt with this?

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mlgilber1
7 months ago

I have super bad nausea, but mines just one of my MS symptoms. It can be a symptom it’s just more rare. I hope you feel better.


stumbler
7 months ago

@robin_geneau , it seems that lifestyle changes are the easiest “treatment”.

I’ve read that Apple Cider Vinegar may help, in moderation. Maybe worth a try.


leogirl
7 months ago

Hi @ robin_geneau, sorry to hear you are going through this’s, i have this aswell so I know how you feel. Doctors don’t give much advise only laxatives which I have tried most of them. They help sometimes. I’v sent you a friend request if you would like to know anything else. Ann Marie X


robin_geneau
7 months ago

Ann Marie;

Thanks. Sorry I haven’t figured out how to accept the request. Yet.

I found a pub med study on gastroparesis and apple cider vinegar. It made it worse not better. It is known to further slow gastric emptying. I assume it’s because it reduces stomach acid. That’s part of the difficulty figuring out what to do. Normally healthy things are wrong. No raw vegs. What?! Very little fiber.

Part of the challenge for me is trying to figure out what helps and what doesn’t with no medical help. Laxatives?! Ann Marie. I found only 1 kind that helps and I have to take a VERY small amt.


robin_geneau
7 months ago

So right now I am trying to get my calories over 1000 per day. And more liquid food!


nutshell88
7 months ago

I dont have nausea i just feem my stomach is full most of the time and i only eat nearly 3 spoons per main meal
And skip the inext meal maybe i skip breakfast happened a lot yeah i was a bad eater before ms but my weight used to be 55 now 45 kg ._.


robin_geneau
7 months ago

Nutshell……..my stomach feels too full also. That comes with the nausea to me. I am trying for more liquid calories. Juice, meal replacements, etc. Even ice cream lol. It seems to be helping.


nonnie
7 months ago

Greetings from Virginia/US, Robin. I experienced nausea for some 4-6 weeks recently. As the days passed, it became increasingly debilitating. Ultimately I was prescribed Methylprednisolone and Zofran. Zofran helped to varying degrees. Within a week of finishing the Methyl pack, the nausea, thankfully, became history.


robin_geneau
7 months ago

Nonnie

Good to hear that helped and pretty quick too. That’s amazing and you know this started in April and I have yet to receive any medication. Was it your family doc that gave you that? Was it gastroparesis? Sounds like sometimes people with MS get nausea for other reasons.

Robin


nonnie
7 months ago

My neurologist prescribed Zofran at my request, Robin. And since I had complained about new chronic nausea several weeks before during an office visit, my neurologist suggested the steroid pack. (My first ever, incidentally.) I don’t know that I was going through an exacerbation or that the steroid helped anything at all. The only thing I ever know for certain is if I get too hot, I become the Tin[wo]man and if FATIGUE (not to be confused with everyday fatigue) hits me, I can expect to sleep at least 18 hours, and that the all too frequent brain-fog make me feel like I’ve been hanging out with Cheech and Chong.

MS is so unpredictable that it makes me crazy.


robin_geneau
7 months ago

I take modafanil for fatigue and it helps alot…………….I have probably been on it for five years. Yes the unpredictability is crazy making.


robin_geneau
6 months ago

My stomach issues now seem to be under control. I have been getting sufficient cals to feel alive again. This was mostly self-help (and thanks for the support and suggestions) and finally the right med (after losing about 50 lbs).

I am also learning how much digestion affects people (disability) MS or no. What a problem! And so few resources.


stumbler
6 months ago

@robin_geneau , I’m glad you’re feeling a bit better. 😊


karen_turnock
4 months ago

Along with the bloating and vomiting I have experienced waves of pain, like labour pains but high stomach, the pain lasts about 5 hours, sound familiar?

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