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7 months ago

@jayjay10 , I know exactly what you mean. I retired last night and my feet were burning and upper body kept twitching.

I had to get up again as being in bed wasn’t helping. I eventually went back to bed at 05:30, having dozed downstairs most of the night.

It’s no fun.

7 months ago


Thank you for your response.

I know exactly what you mean too, the twitches are an increasingly frustrating part of MS when it comes to getting some valuable sleep.

My MS nurses/neurologists suggested that I should get up through the night and try walking around for a bit, I sometimes do that but don’t gain any benefits from doing so.

I guess upping the Amitriptyline dose is on the cards.

Very best to you mate,



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