Last reply 1 month ago
footdrop

Hello,
I wasn’t fully aware of what footdrop mean.
But thanks to this forum and other sites now O understand.
I suffer it before diagnosis even mum used to say what are dragging your leg ? can you even normal?
anyway
its hot now and my feet started burning again this week does anyone
recommend a cooling foot drop shoes or wedges that helps balance nice for young women?
or something similar to keen I love these type of footwear?
as long as its cooling as well..

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stumbler
1 month ago

@nutshell88, I doubt you will find anything which is both functional and feminine at the same time.

read through this article about the subject :-

https://www.mstrust.org.uk/a-z/foot-drop


Anonymous
1 month ago

@stumbler
thanks stumbler. I difnt mean hot feminine high heels luxury no i know my ability hehe havent worn high heels in 10 years maybe
i like trainers short wedges but wide not narrow i like flats but i rather something cooling the feet also looks decent like keen new balance sketchers which is my favorite but its hot material which is the problem i want it for daily use :/ doesnt have to be fancy im modest


Anonymous
1 month ago

can you recommend a website where I could buy best AFO, please?or should it be sized by the physiotherapist or dr? @stumbler but doesn’t AFO in English means aliens flying objects 🙄 is that us MSers are we that bizarre!


itsmewithms
1 month ago

No…aliens need not be involved ;-0 I had this AFO sized by a specialist after looking and trying many options. I chose one that is pretty flexible but there were ones that are stiffer. The PT of that speciality was helpful but this is what I chose: https://www.ebay.com/itm/DROP-FOOT-SPLINT-SUPPORT-SWEDISH-ORTHOSIS-AFO-POSTERIOR-LEG-ANKLE-BRACE/171646121560?hash=item27f6e7f658:m:mL1sSn2V5D7EFvGChL0ZLPQ

The PT gal I saw trimmed the toe area to the proper length and also changed out the velcro with a wider strap.

It did help, for a time, and then I seemed to have another mini-relapse and I found myself catching my toe again. I was also seeing a good PT at the time and we were doing PT specific for drop foot but no matter what I do to the muscles it seems the nerves don’t want to trigger the toes to lift as the foot comes forward. It is worse when I fatigue a little or do too much. It also seemed that the more the AFO kept my toes up the less my muscles in my shin had to and they atrophied.

I am now trying to get approval for a FES device. I am trying to get the Bioness L300 Go approved by my insurance. In the US they seem to prefer the AFOs but while they are less expensive I don’t think it is as effective for me as I like the adjustability of the FES and also don’t think it will cause the atrophy the AFO did- JMHO


Anonymous
1 month ago

@itsmewithms
thanks for the feedback.

‘.it makes sense. i hate letting my nerves get used to depend on something.
and yes i remember couple of years ago my physiotherapist user FES. it reactivated something in me.


watsoncraig
1 month ago

I use an Ossur Foot Up for my foot drop which is supplied roc by the local health board.
There is an electrical device that is less visible (FES) or a SAFO which s customisable


stumbler
1 month ago

@nutshell88 , I was unaware of your present and intended wardrobe, but if trousers are your favoured attire, then all options are available. Trousers cover a multitude of sins, whereas skirts can leave things visible.

Sensible foot wear is an effective strategy, even necessity, for managing some of the problems that MS can cause us.


Anonymous
1 month ago

@stumbler
@watsoncraig
@itsmewithms
latest years I’ve been using this style from skitchet it cools my heels beside there is a huge vessel in the back on the ankle it keeps getting cut my skin is so thin and sensitive and bleeds a lot and when that happens i get a relapse thats why i prefered it like that safer for my skin

now im thinking of this boring but maybe it balances me while i might use afo or fe
almost like men dont laugh
https://www.orthofeet.com/products/chelsea-817-black


Anonymous
1 month ago

stumbler
1 month ago

@nutshell88 , I’m not sure what that second link is demonstrating.

But, the shoes in the first link look fine. My wife has that type of style for her work, as a nurse. It’s a “pan-sexual” shoe! It has a 60 day return policy, so you have nothing to lose.


itsmewithms
1 month ago

As far a what shoes I wore with the AFO my prior PT person recommended shoes with more a “rocker” sole like Dankso mary janes which were nice at work with slacks. She said to avoid anything that really “collapsed” where you could bend the toes to the heels. So a stiff sole was her solution to having me walk better.

I went with that but in the long term I question if it is a good thing as it doesn’t seem as natural for my foot action. The massage person I saw pointed out that the glutes are “fired” by pushing off your big toe. So when you stride to try to push off, evenly, from each foot’s big toe. I think these shoes may prevent that a bit so am watchful for that. I also dislocated my big toe in my right foot by stomping on the brakes in the car to avoid a crash. It took close to a year before I wanted to, or even could, push off that toe. I didn’t realize what big problems that would cause.

So- between that, the uneven gait from MS and I also had a accessory navicular bone removed from that foot when I was about 20…all these weaknesses compounded and I ended up with a hip replacement at the age of 53. I think recovery from this is hampered due to the extent of nerve repair required…so I advise you to take it very seriously and keep your feet/ankles strong and working 😉

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