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@sedakov 

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sedakov

Foot drop returns!

Hi All, I am coming up on my 1 year anniversary of being diagnosed but I'd been living with what I know now was MS for the year previous to that. I take Tecfidera and apart from the hot flushes it keeps everything else at bay. I was on holiday in Canada during the summer and was introduced to CBD oil, this was so significant for me because it stopped the spasms in my left leg and a sensation of pins and needles which was so bad it feels like my leg is on fire. When I came home from Canada I invested in an Ossur foot up splint which solved my foot drop and made me feel like a normal person again. I could finally walk for longer periods of time and felt like a new person, roll on 4 months and the foot drop is back even with the splint and the burning pins and needles have returned. The only thing that hasn't come back is my leg spasms. Has anyone had any experience of core symptoms coming and going? I really hope that this isn't back for good but I'm feeling quite frustrated over it because I felt like I had found a work around which allowed me to be a normal person again. Any advice would be much appreciated. Thanks, Dave
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@DominicS
@DominicS
 

@sedakov , 25y in and I can say that, for me, things have come and gone in much the same way you describe. Often with new and interesting twists on the original. I am resigned to it now and am no longer surprised. About 8y ago I was mid-lecture in Tel Aviv and my ability to speak just went. It was worde than sounding drunk. Moments later it returned and everything was normal. I blamed jet-lag, but inside was properly freaked ot. For the next 6 months ths would happen with little or no warning, last for 20-60 sec then all was fine. It hasn't happend again. Bloody worrying when it does happen because, despite all efforts, a little part of your brain starts catastrophising and running through the all the "what-ifs", always the worst case scenario. The you forget until you read something like your question and reflect. Advice....hmmm. Never ever assume the worst and never ever let the bastard MS get on top of you is the best I can offer. Take it easy.

@Stumbler
@Stumbler
 

@sedakov , the coming and going of MS symptoms can be a bit of a bellwether for your general health. Your MS will start to object if you're doing something that it doesn't like. That could be being over-tired, stressed, etc.. So, take time out for a bit of rest and relaxation. I'm surprised that footdrop is causing problems when you're wearing a splint. That shouldn't happen.