First Posting
Hi, first post.
I was diagnosed almost 7 years ago, in 2013. Initially, I was diagnosed with PPMS, this was changed to RRMS a year later after a big relapse that made it difficult to speak and walk.
Almost straight away, I was put on Baclofen and began 2 years of Tysabri.
Eventually, I was able to walk short distances with a stick, but a rollator is my weapon of choice.
After 2 years, I was taken off Tysabri due to rapidly rising JC levels and after a 12 week wash out, put on Daclizimab. I only managed 6 months on Daclizimab as I didn’t cope well with self injection. I was then put on Gilenya, which I have been on for about the last 3 years.
Hi @ian_johnson and welcome to our clan.
Hi @ian_johnson, welcome to Shift. Gosh, haven't heard of somebody being re-diagnosed from PPMS to RR! How is your mobility doing 7 years later? Glad that Gilenya is working out for you!