Hey guys this is my first post
I have PPMS was diagnosed in May 2017.
I started one tysabri in June of that Year then they Switched me to Ocrevus when Canada was approved year and a bit litter, I started shortly after so my first dose was October 2018.
I was walked with a walker and using a wheelchair 75% of the time, then I gotten worst and now I’m completely wheel chair bound. Before I have been able to transfer on my own with little help, then slowly needed help. Needed care. I started with care 2x a day with 1 care aids. Now I have 4x a day with 2 chair aids and I require a lift to get in and out of bed and chair. I have bladder issues, my memory is bad from time to time. My fingers are often so numb that I can’t feel it. My legs are always on fire and feels like electrical shocks all the time. I was always so positive and easy going. Now I feel like I’m a burden and dragging my family down and I’m feeling dark and that no one understands me. I don’t like the place I’m in mentally. It’s so hard to get out of it. The kicker is my mri scan has not change since last year, it frustrates me as to why my body is failing me so quickly if nothing changing.
I’m 32 will be 33 in September.
This is my story
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