Last reply 4 days ago
First Ocrevus Infusion

Had my first half of my Ocrevus infusion yesterday. No side effects at all, so they were able to keep speeding the drip up.
The nurses said they haven’t experienced anyone having reactions to Ocrevus, so that calmed me down from the start.
My treatment with pre meds and observation after in total took around 4 hours.
Feel a bit tired tired today and a slight headache but apart from that feel very normal.
Hopefully my second half will go as smoothly in a few weeks
Just wanted to post my positive experience on here incase anyone is worried about having their treatment. 😊

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stumbler
6 days ago

@pippa87 , it’s always good to have good experience reports.

All the best for round 2.


bennym
6 days ago

@pippa87 would you recommend this over taking pills?? I might get offered this and I’m about scared really, don’t know much about it.


pippa87
6 days ago

@bennym I haven’t had any other treatments, this is my first.
Personally I wanted to go for the most effective, that’s that main reason why I choose it. Also felt very lucky that I was offered to me.


lukezni
6 days ago

Glad it went well for you! I’m back on Monday for my second half dose 💉


dominics
6 days ago

Great news. Exactly the same for me. I was speaking to a Doc who was involved with the ORATORIO trials (Ocrelizumab) and he said that was his main take-away, how little people reacted at all.

Happy days. Fingers crossed for the next one.


pippa87
6 days ago

Thanks everyone!


amanda709
5 days ago

I’m so happy to hear this, I am having my first 1/2 treatment next Thursday.


pippa87
4 days ago

Good luck @amanda709 I’m sure you’ll be fine too!


edmontonalberta
4 days ago

@pippa87

I have a question. I have PPMS and have been given no drugs at all since being diagnosed more than two years ago. I was finally approved for an Ocrevus infusion & expect that to occur in the near future. In the meanwhile, the medical field has gone into overdrive.

We have the Kaye Clinic in Edmonton; I am seeing them a couple of times a week for physiotherapy, occupational therapy, a dietician, etc… Plus they say I need all my immunizations updated so have had five shots over the past month. The most recent one was a few days ago – it was as if they hit my upper arm with a baseball bat – nice dis-colorization, etc…

Is this pre-infusion normal? Or is this just a Canadian strategy??


pippa87
4 days ago

@edmontonalberta

It’s great that Ocrevus has now been approved for PPMS. I hope it works well for you.
I didn’t need any vaccinations prior to the treatment as all my immunities were fine, but I know from past experience having injections can make your arm feel sore!
As for the treatment, Iv got slight bruising from where the cannula was, but no pain.
I had a failed attempt in my left arm first and that has a little bruising and feels a little tender. My mum is a nurse and she explained that the needle didn’t quite sit in the vein properly and has slightly punctured through as that’s why it’s a bit tender in that arm.
Vaccinations sound like the only painful thing about it, so you will probably be on a smooth run after those! Haha

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