Last reply 6 months ago
Finally Diagnosis!

Yes I am finally out of Limbo land! Got email yesterday saying the MDT team had reached consensus that I have MS and should be treated with alemtuzumab or ocrelizumab. Thus I need to look these up, whilst it was uncertain I didn’t bother and now it seems urgent!

And also reply to my friends who are sending hugs and love through FB ☺

And work on my market stall…

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stumbler
6 months ago

@thequietlady , you can now put a stake in the sand and move on.

There’s some details here about the two Disease Modifying Therapies (DMTs) mentioned :-

https://www.mstrust.org.uk/a-z/lemtrada-alemtuzumab
https://www.mstrust.org.uk/a-z/ocrevus-ocrelizumab

You can find details of the other DMTs here :-

https://support.mstrust.org.uk/file/DMD-Book-Final-WEB.pdf

Onwards and upwards, eh? 😊


thequietlady
6 months ago

@stumbler thank you!


grandma
6 months ago

Welcome officially to our exclusive club! At least all those strange sypmtoms over the years are at last medically explained, not that that’s any solace, but now you know you weren’t going nuts😜🥊


thequietlady
6 months ago

Thanks @grandma!


Anonymous
6 months ago

To alot if people joy seems like the wrong word to use following this diagnosis. However from someone else in “limbo land”, I am so happy for you. Although it not the greatest outcome I’m happy for you that you have an answer. Best wishes to you in the future.


vixen
6 months ago

Hi @thequietlady, do congrats are not exactly in order, but knowing, means you can start to put a plan together. Goes without saying you have lots of support here. Treat yourself very kindly, and keep posting! X


thequietlady
6 months ago

Thanks @kristy_gramiak and @vixen !

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