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@HocusPocus 

Last reply

HocusPocus

Feeling super shaky - reassurance plz?

Hi guys, Still not MS official yet (I’m actually in the process of waiting for the results of my MRI) but I am like 99 percent sure I have MS as all my mysterious symptoms over the past year seem to fit. We’ll see. Anyway, I wanted to ask this very friendly forum for a bit of advice as I’m really struggling with tremors recently. My hands are extremely shaky (not great seeing as I’m a writer, by trade!) and my arms and hands get bouts of electricity, if you guys get what I mean by that. I’ve seen this symptom come & go, but over the past two weeks or so it’s been pretty relentless. It’s an intention tremor, by the way. For example, typing on my phone makes my fingers shake. I’ve even relented into ordering some CBD oil from Holland & Barrett.. just anything to help. Oh and obviously I’m very anxious about my impending diagnosis and also I’m not sleeping well... all that jazz, I’m sure many of you can relate! Any coping tips you guys have or any similar experiences you can share would be much appreciated. I’m managing to get by at work, I’m just feeling pretty alone. Soph xx
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@cameron
@cameron
 

I've had MS since 2003, live fine now and never in the intervening seventeen years have I felt as dreadful, (suicidal, actually) as I did in the pre-diagnosis stage. I don't need to describe it because you're living it now. The moment you hear the diagnosis, things change. You're on a different page. Support, treatment, coping strategies begin. Suddenly, there are options, things to try, things to be checked, people to ask questions to, review dates set...... In fact, that's when the work begins, because the emotional energy you're squandering in stress has to be converted into working out how to conduct your life. (Believe it or not), this is a positive process. Sadly, not a quick one and you'll likely find some blind alleys, as things you try turn out not to be helpful. But it's way, way better than where you are now. And if my experience is anything to go by, you really can live well once you know what you should be doing and what enables the MS to be kept in its box. You have far more treatment options than I did in 2003 and it honestly is a hopeful picture. Let us know how you get on, sending hugs, xx

@Theresa_Shaw
@Theresa_Shaw
 

Hi. Did your tremors get any better? Suffering myself with it, off and on. Not diagnosed yet. Did you get a diagnosis? Hope you're well. T xx