@AggieT81 

Last reply

AggieT81

Feeling like crap

Hi everyone, This is my first time posting and needing some advice/information or just to vent I guess. I was diagnosed back in June of this year but my first serious attack happened in January 2017 and since then I haven’t felt good at all. I had maybe 10 good days where I felt normal. I’m always in pain, fatigue stays but just changes in intensity plus all the symptoms (pins and needles, burning, numbness, brain fog) come and go but most days they stay. I just feel like crap🤨 and it really gets to me. I have 2 small kids (5,4) so it’s hard to rest but school is starting soon so I’ll have a break. I guess I’m wondering is this how I’m going to feel forever or is it gonna get better or do I learn to live it and how do I manage this. Like I said I just feel like crap all the time, might have a good day or two or a few hours and then that’s it. I’m desperate not to feel this way or find ways to cope with this?! Thanks everyone.
@Stumbler

@aggiet81 , You're still quite new to all this, so be patient with yourself. The answer to your question(s) is "management". First, your pain needs to be managed. In this day and age, no-one should be expected to live with pain. There's an article on pain here, discussing the types of pain and how to manage it :- https://www.mstrust.org.uk/a-z/pain Similarly, fatigue won't go away, but it can be managed. There's a "Spoons Theory" that MSers talk about, which explains the problem :- https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/ And here's a booklet, which provides some answers for your consideration:- https://support.mstrust.org.uk/file/Living-with-fatigue-2018.pdf I'd love to take these issues away from you, but life doesn't work like that. So, I hope you find some hope here.

@Highlander

Hi @aggiet81 Welcome to the club! You feel free to vent all you like we've all done it , all you'll get back is understanding Replies and pretty good advice when you need it. I've got a daughter and when she was that age I found it hard and I was ok at the time, she's now 20 and I worry about her more now than I did then. So I know how you feel bit you'll find away of working it out there is always a way of managing things. Kids are pretty much indestructible we all managed it and we had it harder than them......Well I keep telling it to my daughter! The rest of the crowd will be along soon. Their far more enlightened than me! Keep smiling