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1 month ago

Thank you for being open/vulnerable/honest and for sharing this. Great role model behaviour.
Regarding doing things for your self, DO/DELEGATE/DELETE – I learned that from the MS society Fatigue online course. Do what you can, Delegate where you can, Delete it if its not urgent/important/needed (reducing your list of things).
Take it day by day because what you can’t do today, you may be able to do tomorrow or even in the next few hours, accept you may not – that’s OK – try not to be too harsh on yourself.
Negative thoughts need to be removed. When I was first diagnosed in June 2019 I use to say “I’ve lost all who I was, I can’t, I don’t, I’ll never” now with help from MS Pro’s, I honestly say “I’ve gained so much knowledge, I’ve found strength I never knew I had, I’m more capable than I thought, I can, I do, I’ll always” – Be mindful – <3
Embracing aids and asking for support from others, reaching out to MS professionals – occupational therapist, physiotherapists, psychological therapists shows strength-self awareness-realistic-proactive.
Keep talking, reflect daily, what you found easy/challenging – why – what action you took to overcome the difficulties – what did you learn that worked…do that again. You may surprise yourself with how much you actually can do. I wish you all the best xo

1 month ago

Thanks, Amy – some useful advice in your post.

1 month ago

Hello @bassannio_collis. I really believe that the Covid crisis has had a real impact on us MSers. No matter how we feel about ourselves, we were suddenly put into a new category and our ‘vulnerability’ was highlighted. We have all undergone a situation where we have had more time to reflect, stress, contemplate. I can see that your diagnosis was last year; as time goes on, living with and accepting our condition does get easier, believe me. It’s great that you are able to express things on here – thanks for sharing 🙂

1 month ago

@bassannio_collis , try and put these negative thoughts out of your mind. This can only cause stress.

Stress is a major agitator of MS, so don’t stress yourself into making your fears come true!

1 month ago

i see you’re not on treatment. Any reason?

1 month ago

yes I’m getting treatment …

1 month ago

one minute you running down the street the next you are scared to walk down the street, I like to look for work that aloud people with Ms to work for them ….

1 month ago

FEAR is a liar………..

It doesn’t always produce the end goal it says it will.

Focus on what you CAN do and build upon that.

Life is tough, you have to be tougher………….. its that fight or flight reaction.

Stay strong.

1 month ago

@bassannio_collis I feel exactly the same my life has just stopped because of this Illness to say I’m frustrated and angry is an understatement you’d think after 20 years of living with it it of got to grips with it.
Keep on keeping on on this bumpy road

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