@Jules71 

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Jules71

DMT dilema! Seeing MS nurse tomorrow...

Hi, I'm currently on daily glatiramer acetate/copaxone injections, have been for 5 yrs. But, due to bad lipoatrophy, it has been suggested I can switch to copaxone 3 x week injections OR the oral med dimethyl fumarate/tecfidera. However, having read up on tecfidera, I really don't like the sound of the side effects! And because it seems to suit me, I'm only changing because of the lipoatrophy, so don't want to change to something that makes me feel bad :( Have any of you experienced this switch of meds? Thoughts & experience of Copaxone 3 x week? Thoughts & experience of Tecfidera? What were your experiences? Side effects? Thoughts? I have an appointment to see my MS nurse tomorrow but still can't decide what to do?!! Help!! Thanks in advance! Jules
@Gemma87

ive gone from capaxone to tecfidera recently. The side effects in the Tecfidera booklet lasted with me for only a couple of days. The first week is a bit rough but now 3weeks into it im fine. Ive had a bit of hair thinning but doctors and ms nurses are telling me this is not a side effect of tec so im trying to tell myself its down to a bit of stress. Capaxone definitely has less side effects and you say it is stopping your relapses so obviously this would be a more comfortable option for you however what youve got to remember is Tecfidera has a better chance of stopping further relapses in the future and ive found the side effects not that bad at all. I thought capaxone was working for me until march when i had a bad relapse. If the neuro wants to put you on stronger meds such as Tec maybe you should really consider it x

@potter

I have been on Tec for three years, I did go through several months of side effects but it was worth it. I haven't had any issues for years and no relapses. I was on Rebif for five years and felt like I was getting over the flu most of the time. Taking a daily probiotic helped with the Tec and taking it in the middle of your meal. I had to stay away from spicy foods for awhile but it was all worth the effort. I never had any of the flushing other MSer's talk about. Potter