Hi all, hope you are keeping well and safe in these unusual times. I am newly diagnosed in March, first symptoms 18 months ago and 1 minor relapse 6 months ago. Other than that I am lucky not to have any symptoms of note. I discussed with my MS nurse DMT drugs early March and my neurologist recommended 3 drugs, of which I decided on Ocrevus. COVID then happened and everything was postponed. I have now been contacted and booked in for my first course in 2 weeks time.
After diagnosis and with COVID and no symptoms my life went on as normal, I could forget I had MS. I’ve only told a couple of family members and good friends. I’ve not told my employer. I have quite a senior job and it worries me that people will treat me differently and I don’t want to be different – I don’t know if that makes sense. I know it would be kept confidential from majority of staff but senior managers will know and I’m worried it will change things at work. But I’ve been told I need to either work from home or social distance for 4 weeks after treatment – so now I have to tell my boss? My work has put in place good social distance measures already – I am in a dilemma, should I tell work or not.
I’ve even thought should I delay starting DMDs? In the last 12 months I’ve changed my diet, I run regularly and feeling fitter than I have ever done so in my life!
I am definitely still in denial, I was offered counselling but said not needed. Is it time to get real? I am grateful my symptoms are currently mild, I really don’t want to come across as selfish, I guess I am scared of what the future brings and I am holding onto the past.
Sorry for rambling – it’s taken me 3 months to summon up the courage to post on here.
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