@MaraJade 

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MaraJade

Disappointed with new Dr

So, When I was diagnosed 2 years ago, the neurologist kept trying to push anti-depressants on me right away, saying “everyone that’s newly diagnosed gets depressed”. I hated that attitude so I switched Drs. I thought the new one was great, but after a year, she started only “ seeing” patients via video chat...even after I had a new lesion appear and she switched me to Tysabri. Then she suddenly decided not to be a neurologist anymore. She literally emailed me my record, with no MRIs, and said good luck. I lost my insurance at the same time and moved. I haven’t had Tysabri since April and I’m pretty sure I had a massive relapse while off it. I finally saw the new neurologist (the only one close that insurance covers) today, and I fear this one is gong to be a mess as well! She straight up told me she doesn’t know much beyond basic MS care because she specializes in epilepsy. I’m so frustrated...Having this is hard enoug and we aren’t supposed to stress, but most of my stress has come from the damn Drs! I can’t win. I feel as though no treatment and Drs would be better for my mental health.
@SherryAK

Wow. You’re having a great time with doctors. When I was first diagnosed, I was at the hospital & he was the neurologist that was on call. He moved to a higher-up position & pretty much dropped me as a patient. After he dropped me, I learned that his specialty was with sleep apnea & Narcolepsy. I lucked out & ended up with a doctor that specializes in MS. My doctor now has an office at an MS clinic & evaluates me every 12 months to be sure there’s nothing that I need to work on with the Physical Therapist or OT. My care now is so much better. Don’t get too discouraged; I hope you end up where you need to be too. {{{hugs}}}

@Mlgilber1

Omg I’m so sorry you’re going through this! It’s super frustrating and stressful trying to find good doctors and ones that actually care. I agree with you on antidepressants. They aren’t for everyone. I’ve had doctors try to push them on me when I was first diagnosed and they make me worse. My first neuro did the basic tests and told me it was just anxiety. Two days later I end up in the ER where I was diagnosed. My first neuro said he doesn’t even treat MS, but luckily the ER doctor had her own practice and accepted my insurance. She was great, I really loved her, but after just a month I suffered another bad relapse that landed me in the ER again. I couldn’t feel or move my leg! She said it appears that mine is pretty aggressive which she didn’t have much experience with that. She immediately put a referral into Barrow Neurological Institute which thankfully I’m covered there. It takes them up to a month just to input people’s referrals because they have so many. Thankfully the guy on the phone was super nice, found mine in a stack of papers, but they were booked till October and this was a couple months ago. He put me on a wait list and my neuro was willing to go ahead with treatment because she didn’t want me to wait. Thankfully the guy called back within a couple days saying they took on a new neuro who also specialized in ms and they could get me in the next day. I see him now and I now have a ms nurse there as well. Also, they have an infusion center so I go there for pretty much everything. I considered myself very lucky that my diagnosis didn’t take longer and that I’ve found great doctors. Hang in there, I know you will. It is super important to find one that specializes in ms. I wish you the best of luck and please keep us posted! I hope things start to go well for you!