Last reply 1 month ago
Disability

I’m too the point where I cant stay on my feet long at work. I’m having mobility issues and I’m constantly tired and fatigued. I need guidance and advice on how I can acquire disability perhaps, and what options I have.

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cas84
1 month ago

Hi Kyle,
Speak with your MS nurses, they should be able to give some guidance on whether that is possible. Maybe you need a stronger treatment if you are struggling so badly? Have you spoken with them recently? Failing that, speak to the MS Society, they have helpers and can give guidance on applying for PIPs and legal advice, as the company you work for, should be aware of your MS and therefore should provide what are termed as ‘reasonable adjustments,’ allowing you to carry on in your job.


kyle1983
1 month ago

@cas84
Thank you for your response. I’ll talk with the bosses at work and see if adjustments can made. I work in the oilfield, and right now I’m just lucky to have a job. I’m on Ocrevus right now and the first couple of infusions seemed to work great. But this round hasn’t seemed to work. I felt awesome at this time last year. And right now I feel horrible all the time. I had MRI’s done and according to my neurologist the lesions haven’t gotten any worse. I just don’t see how that’s possible with the way I have been feeling


cas84
1 month ago

What’s your diet been like? Do you eat lots of stodge, fatty foods and sugar? That won’t help, and will make your MS act up, so try to eat as clean as possible. If you are already eating clean, make sure you aren’t having hot baths or showers, they should be a cool temperature, so as not to aggrevate your nerves. You should be getting an adequate nights sleep of 7-9 hours, and if that means you need a few early nights, then turn in earlier. get into a calming night time routine, which will help. That way, your brain will get used to it and know when you are winding down for bed. Spring shows an influx of MS relapses and high MS activity, because we’ve just gone through winter, so haven’t had as much vitamin D3. Take supplements if you don’t already, and iron tablets can help with fatigue.


vixen
1 month ago

@kyle1983, are you in the US? I’m not sure if it’s called the same there, but you should ask for an Occupational Health assessment. It’s tough having to think about giving up, or adjusting to another style of work habits. I don’t know what work you do, but I’m sure there can be an easier route for you doing things a little bit differently…. 🙂


kyle1983
1 month ago

I’m eating good. I’m probably not getting adequate sleep but I’m trying. I work in the oilfield so the work is hard, but it’s the only job I’ve ever had. It’s kinda scary thinking about starting over. I usually do take hot showers, that’s probably something I should change. I feel like I need a nap after every shower

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