@Caseyxo 

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Caseyxo

Did you have DMDs at CIS stage?

Hi everyone, I have recently been diagnosed with CIS at age 30. Quite a lot to take in.... I have seen one of the top neurologists in the North West UK but he was very flippant about the diagnosis and the possibility of another attack within 2 years. He also wasn’t prepared to offer DMTs but sent me off into the world with the advice to get on with things and take some vitamin D. I couldn’t take too much in during the appointment, so I am thinking about going back for a bit more discussion...and his reasoning on no DMTs as everything I have read suggests the earlier treatment begins the better. My question is, for those who had a CIS stage did you start DMDs? Any advice on how to approach trying to move forward ? I really feel I don’t know who to turn to to discuss this and the options if any that are available. Thank you, Casey
@Stumbler

Hi @caseyxo , here are some details about CIS and the rationale behind whether to start on DMTs, or not :- https://www.mstrust.org.uk/a-z/clinically-isolated-syndrome-cis

@californiadreamin

@caseyxo Yes my wife was technicaly CIS when diagnosed at the end of 2016. She had MRI's and the mri's showed she has lesions in both time and space (spine/brain). This was enough to conclude that even though she was CIS she could begin treatment. (We are in the US by the way). Today, that would be enough to declare that MS based on the new standards. Starting treatment early as possible will most likely improve your long term outcomes. What did your MRI show? If you havent had one, it might be a very important data point on your next steps. Regardless I would suggest there is a lot of hope for MS patients today. Consider a lifestyle modification to improve your long terms prognosis regardless. I think in the UK you can get a copy of Overcoming Multiple sclerosis for free, but we ordered it from Amazon. It is very encouraging and full of hope (after you get through the first chapter). You can also go to that website first if you want to take a look: https://overcomingms.org/ Keep in mind there are other options besides that program, but I think regardless its a good starting point to start learning about things. In terms of options, there is much very reliable scientific information available. The key is to make sure you know what you are reading/watching. But I would strongly recommend learning a bit about it first by getting a copy of that book. Even in the last two years science had advanced and you have even more options available today. Once you do something like that, you will be a more informed person and will be in a better place to evaluate options.