Last reply 2 months ago
Diagnosis

Hi I have had a recent mri identifying inflammation on both spinal cord and brain. Iโ€™m seeing neurologist on Friday. Did anyone get a diagnosis with the same mri result? My symptoms are weak left leg, tingling in right hand and poor balance. I also tend to be very sensitive to alcohol.

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thorpee
2 months ago

Hi there, I got my diagnosis a couple of months back. My MRI showed very similar to what you describe. Brain and spinal cord (neck) and my symptoms of note at the time were weak left leg, twitchy left eye and sometimes left hand. I’ve had another MRI since and there are more lesions in my brain but I have no new symptoms thankfully. I was supposed to have a lumber puncture but because there was more than one lesion in two separate areas and the time line of symptoms suited the criteria for a diagnosis I was spared that one. I dont wish for you to have MS but I hope you are close to finding out what is going on with your body. To be honest, I felt relief when they said it was MS because I’d been having so many appointments and seemed to be getting nowhere. Then all of a sudden they phone up and say “this is what it is and here’s what we can do about it”. ๐Ÿ‘


ciara1982
2 months ago

Thanks so much for coming back to me. Yes it seems there is a criteria for diagnosis. I suppose along with the MRI the consultant will want to know about symptoms etc so I shall see how my appointment on Friday goes. Do you take medication?


thorpee
2 months ago

Hi, I started taking tecfidera three weeks ago. It’s been fine too, I had perhaps four days last week where I felt sick and had stomach cramps but it passed and is now fine. I get a prickly heat feeling in my face and scalp too but that is getting less and less and only ever lasted 20 mins at the most. Once I did go bright red like a beetroot but I was taking up floor tiles with a hammer and chisel so I think exertion probably exacerbated the prickly heat thing. There was no rush to start on a treatment though until the MRI with more lesions. The neurologist asked for that one with contrast which is just a liquid which they inject, so you might get sent for one of them next. I’m sure youll have read time and again though that nobody’s route to any diagnosis is the same but I hope you get some answers soon.


vixen
2 months ago

Hello @ciara1982. Most people’s diagnosis is confirmed through a lumbar puncture, although experienced neuros generally have a firm idea when looking at MRIs. Your can be diagnosed if either brain or spine lesions are identified, or a combination of both. Experience tells us that speedy diagnosis is often a postcode lottery too, dependent on who specialised various hospitals are. That said, lots of MS symptoms overlap with those of other conditions too, so hopefully you get to find out as soon as possible. All the best, and do post any questions you have. Would be good to hear about how you get on at your appointment ๐Ÿ™‚


stumbler
2 months ago

@ciara1982 , there is a set of criteria to diagnose MS, the McDonald Criteria :-

https://www.mstrust.org.uk/a-z/mcdonald-criteria


ciara1982
2 months ago

Thanks so much for your info. So I went to doc with foot drop and weak leg, tingling in fingers. Mri shows inflammation on both spine and brain. Looking back I have experienced vision problems, dizziness stiffness hands over the last year. Would this fit neatly into any of the criteria @stumbler. ?


ciara1982
2 months ago

@vixen I will keep you posted xx


stumbler
2 months ago

@ciara1982 , I wouldn’t like to say. Different Neuros may interpret this criteria ……………..differently.

One of the main requirements is to be able to identify activity at two different times. It’s this that gives us the “Multiple” in Multiple Sclerosis.


ciara1982
2 months ago

Hi everyone, so I spoke with neurologist today and he tellS me he feels
The weak leg was an incident but the hand heโ€™s not so sure. He took bloods to
Rule out anything else, ordered up a lumber puncture and has referred me to a neurologist who is an ms specialist. The mri has identified multiple lesions on brain and spine, which sounds so scary ๐Ÿ™ˆ!


stumbler
2 months ago

@ciara1982 , this goes to show how notoriously difficult it is to diagnose MS, with similar symptoms presenting in other conditions.

A diagnosis of MS is a big thing in the life of a patient, so it has to be the right diagnosis. Once done, it can’t be undone. Hence your referral to an MS Specialist.

When you look at the brain in detail, you may see some scary things. But bear in mind, these could have been acquired over a number of years when you probably had no noticeable symptoms and were none the wiser.

Some lesions are just acquired by anybody as they age…….


ciara1982
2 months ago

@stumbler that makes me feel a bit better. When they refer to multiple lesions it sounds so bad. Although the neurologist did say there will be. A lot of people walking around with lesions they arenโ€™t even aware of. Do you know, in your experience if the MRI with contrast helps date lesions? What I mean by that is, is there a possibility they all occurred at the same time ?


stumbler
2 months ago

@ciara1982 , the contrast would highlight the “active” lesions. So, if there are active and nonactive lesions, I would assume the nonactive lesions are historical.

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