@EllieSmith 

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EllieSmith

Diagnosed a month ago today.

I was diagnosed with RRMS on the 12th December '17. I'm really struggling today with trying to understand this. My neurologist said he rarely diagnoses people my age (25) which seems odd because it seems to be the average age for diagnosis... Most of my lesions are in my neck. Which has made for some very interesting issues over the past 8/9months. (And well many years but with no understanding that something was actually wrong). How the heck am I supposed to accept this! - I'm going to be part of the research with futurems, in the hopes that it'll help others in the future as they learn how the path of progression ms will take in those with it. Sorry I don't know what else to do. Im just trying to learn how to accept how my life is changing constantly, my independence is going down.
@pikilily

@elliesmith.....Hi Ellie I was diagnosed on 1st Dec 2017.... RRMS...and I think I probably has the same Consultant as you. Dr. O'R ??? He is super. I also have agreed to do the FutureMS research, in fact my appointment was yesterday. The FMS team are super lovely....and the process is very interesting. I learned a few new bits of info about my personal condition. and if you think of it by doing this research we will have two specialist consultants on our case. What is fabulous is that if the FMS team feel they can input in to your individual care plan, they will. Dr O'R is part of this research programn too so they have a good working relationship. I am just along the road from you, past Coupar Angus. Although I am, ahem, twice your age!! If you need or want to chat, or meet, we can sort of stomp this MS path together! i hope that I haven't made too many assumptions here???!!! all the best. Emma T

@EllieSmith

@pikilily first of all thank you for your comment. Same consultant yes. My appointment with FMS is on the 25th (because I couldnt do yesterday as I had my support worker over). It's probably be nice to know more about my condition because honestly all I remember when I was diagnosed was that most of my lesions are on my spine. Question - did/do they do contrast MRI? - only thing I haven't asked them. Dr O'R is nice, I'm not entirely sure on him, he seemed completely in shock when he had to tell me, he went from chipper as he took my notes in to the room to very apologetic by the time he came out again. So atleast I know he cares. I live in Perth itself. Glad/sad to know there are other folks going through this too. Honestly don't know what to do with myself. Honestly crying cause it feels more real now knowing others so close are going through this process too... Thank you for you comment. Twice my age doesn't really matter to me, anyone who can understand the fear and the general "oh crap really?" And then pain, is someone worth talking about. Hell I'm sure we'll have tips for each other that actually apply with the whole weather thing. Sorry I'm babbling. Thank you again.