@M1B4 

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M1B4

Dealing with MS

Hi all So this fall we found out that my brother has ms – his in his late 20 and the symptoms came out of nowhere. Naturally we were all upset but as the days went by i learned more about MS and my brother himself is a doctor so he is fully aware of the situation. Still I find it very difficult to deal with it. I get very upset about it, I keep reminding my self that it’s going to be fine and he will be okay. But somehow I just can’t help but find myself super sad and anxious about the whole situation. I havnt told many people either about it either . have you told many people about your ms? So now he has decided to do the Lemtrada treatment and we are two days in and he seems very well (thank god). Tomorrow we are going in for his third day, and I’m with him everyday as moral support. I just want to know that everything will be okay. Any word of encouragement? Thanks
@Gijs

First of all - how is your brother dealing with it? Has he managed to wrap his head around it a little bit? From the medical point of view - I’ve had a talk with my mum whose a biologist and she was terrified with MS based on the data from 1980-2000 (no dmts, sometimes decades to get a DX). It prompted me into looking at advances in managing MS, and it really seems to have boomed in the last 15 yrs. It really is a different disease than what it was in the past, and hopefully, the next 15 will be even more fruitful and we will be able to completely halt the progression of the disease (regeneration of the damaged myelin is a dream). Generally, yeah, its shit to be diagnosed with it, but it's much better than it was a decade or two ago, so we're heading in the right direction, I'd say. And, your brother is a young guy, so - hopefully - with the right choice of DMTs he will get on well until a breakthrough happens. I can tell you that since starting tysabri a couple of months ago, all of my symptoms have subsided, I feel better than I felt in years, and I plan to keep it that way. Lemtrada seems to be even more efficacious for many people, so fingers crossed for him and you!

@M1B4

Thank you. He is actually doing good and is positive about it. He has changed his life style and eats super clean and works out etc. So I’m happy to see that he takes it super serious. He is pushing though everyday with this treatment and knows the benefits. I just can’t help being I guess afraid for him but that’s my own battle to fight.