Last reply 3 days ago
Curious about when to apply for disabili

I am finding it hard to be at work with my symptoms. However people look at me and say I’m not showing signs of disability. I’m also curious about the process, and stories will help.

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itsmewithms
5 days ago

This kind of links into the “but you don’t look sick” comment from yesterday that yielded some good discussion…some frustration expressed and also some humor. Good times 😉

I was let go from a major corporation this summer at a time when they had a pack of layoffs. The complaints my boss had against me were unlike any issues other bosses have had with me for the last 30 years I have been working. I usually get top ratings but she really wanted me gone. Was she an awful boss (several in the area say Yes) or was I a bad employee? at any rate bosses win…so I am out.

So now I have started looking for a new job. No luck so far. I have great experience in a needed field that has strong demand. I have an accounting degree and close to 20 years experience implementing ERP systems.

I went in for 3 interviews. Through this time I was under considerable stress (with a husband asking up to 5 times a day if I had a job yet – while he has been working on the house and out of the workplace for over 15 years) and issues sleeping. What brings on relapses # 1 and #2? loss of sleep and stress. So through this time my gait gets worse and worse. I move from having a limp to needing a cane.

Add this obviously visible sign to my age that can be guessed at by the experience listed and I don’t get any offers. Age discrimination? Disability discrimination? or “another was selected with more relevant experience”. hmmmm

So – next week I will be going to a required meeting by the group that pays disability to see if I am eligible for that vs unemployment. My Dr is willing to sign disability statements so I may qualify – but for a small fraction of my previous salary – but my husband is wondering how this is possible as I don’t meet the definition he sees. I only have one leg that is visible affected (right) and you need 2 according to what he sees. I should learn more next week.

I also have an appointment with a Neuro Psych in late November. They are super hard to get an appointment with. I expect to learn a lot more about cognitive impairment, how much of that I have and when that qualifies for Disability.

I have another interview next week for what looks like a great consulting gig for a 1 year contract. That may be my best shot as they aren’t looking to “buy” you but just to “rent” you so may not be as concerned about perceived disability as they aren’t insuring you and potentially having to pay you disability insurance, etc.

Curious where this thread leads but with being in so many different countries that needs to be considered as well as laws are so different.


okiimomo
5 days ago

Well, I am new to this community and definitely need to go back and read previous postings. Thank you for your story. At my last review my boss told me that I should work on my manner and mood with people. I know that my pain and tiredness contribute to my snarky, cranky, not smiling self. My mom will even tell me when I’m extra irritable.
I am looking into part time work, hoping to be at a new position with shorter commute time and see if my stress level decreases. Unfortunately this will be a decrease income-wise so will have to tighten up the belt.


itsmewithms
5 days ago

I will also be asking about “partial disability” to find out what that is about and if it would help as I may potentially have to cut my hours or my pay in order to work at a local company, cut down on stress, get enough sleep and maintain enough time for PT and proper diet.


okiimomo
5 days ago

@itsmewithms I have a referral for PT going right now and am hoping it’s not only during morning hours, or will definitely need to reduce my work hours.


itsmewithms
5 days ago

I also made sure that this PT guy has some extra Neuro training. My last PT gal certainly didn’t recognize when I had spastacity developing me and discouraged me from stretching and yoga. Not the right direction for me or others with MS.


okiimomo
5 days ago

@itsmewithms I am continuing with my stretches daily although yoga has become challenging. Thank you for your recs!


jen1973g
5 days ago

What do you want to know?


nutshell88
5 days ago

I used to live in the uk they gave me ela and dsl but one day a dr called me zi walked around the street and went to the job centre to meet him 6 am he said read these lines ii read then he said so you can read i knew he wasctesting my disavility level i said as you can see and how did you come to here
i wouldnt lie of course altho i realized he was testing
after short while he stopped itall without a notice
also this year in saudi they stopped my dla
they said you’re working and insaurance gives you a vgood amount of money other people needs it lol well


nutshell88
5 days ago

but in saudi they give me a free land or house


okiimomo
5 days ago

@nutshell88 how do you work and manage or make accommodations?


jen1973g
5 days ago

Live in saudi


nutshell88
4 days ago

I used to work 3 days a week at citizens advice din Edinburgh and I used to also go to college the other two days of the week to study English despite the symptoms and ms i was almost symptom free anyway I have a very bad eyesight reaches blindness almost lol due to corneal condition other than ms I fell on the street and even train railway and ripped my jeans more than once lol
I was all alone there and for a saudi girl not used to go on about by her aen as scottish people say im asking myself the same question how did i manage I wasnt on ms treatment even i refused so afraid i die abroad of side effects besides i dont fancy treatments of any kind

Now I have 6 hrs job at the evening 3 pm to 9


nutshell88
4 days ago

@ jen1973g
I’m Saudi used to rent a flat when I was living in the uk at Wharton square
but in Saudi we own a wee mansion lol jks i mean villa
treatments free here and I live with my family 😉


okiimomo
4 days ago

@nutshell88 wee mansion LOL and so glad to hear you are home with your family and getting free treatments! Living the life!!!


nutshell88
4 days ago

borrowed wee from Scotland lol
you deserve everything too enough that you are an MSer x
you deserve easy life you really do x


okiimomo
3 days ago

@jen1973g

Hey, I was just wanting to hear about when people made the decision to go on disability or change their
Job or career and how it went yadayada


jen1973g
3 days ago

Ok. I was full time loved working then I had to drop to part time then I was spending all my energy trying to work and I had nothing left to give . My gp advice to cease working and I did still upset I can’t work but I in the end it felt like ms made the choice for me love.
If I’m blunt I’m Aspergers no offence intended.👍

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