Last reply 2 years ago
Copaxone injections!

Hey everyone!!

I’m still very new on copaxone. (Just completeled my first week of it)

Now, just to be sure – if I get an injection red and white bump, would this mean I didn’t go deep enough using my auto injector?

I was kind of expecting a reaction tonight. I used a “10” on my thigh last week, closer to my knee.

I just did the upper part of my thigh using a 10 and I’m pretty sure there’s more fat there and should of used a 12.

Just want to see what others have experienced before I start accidentally stabbing muscles lol.

Thank you!

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samanthastyle
3 years ago

The bump is not like a circle. It’s white and jagged. And surrounding the white bump is red.


potter
3 years ago

I had to quit injecting into the front of my legs, the areas where I injected would swell up the size of eggs and get hot and infected. I used the auto injector, my neuro had me quit injecting on my legs he said they were too muscular and I was hitting muscle. Potter


gemma87
3 years ago

These bumps are absolutely normal dont worry. It’s nothing to do with how deep you are injecting. the bumps are the only side effect to capaxone. They should go down after a few days and eventually over time they will appear less and less x


gemma87
3 years ago

Ps. The bunps itch like mad! I injected on a night so by the morning the bumps were not so sore and itchy x


gemma87
3 years ago

Make sure you rotate your sites aswell


raegun67
3 years ago

I can’t inject on the front of my leg, too much muscle. I use a 10 on my belly and hips and an 8 on my arms.


hope33
3 years ago

If you can, try and manually inject and see if that makes a difference.

I manually inject 3 times a week and do not get bumps as such. I may get one a week or one in two weeks and even then it doesn’t last more than a day. No itchiness either. I also am strict about rotating my sites.

All the best.


avengr13
3 years ago

Hi @samanthastyle
I just started copaxone myself after many years on avonex. I have some of the same questions. I get a nickel sized red spot with bumps and no itching. It lasts about an hour. With avonex I used to get flu like symptoms but nothing with this. If it works like it is supposed to, I like it! As far as i like yucky shots 3 times a week. ?


samanthastyle
3 years ago

@avengr13
Canada doesn’t have the three x a week shots yet so I’m on the 7-day shots.

I’m going to try a deeper depth tonight on my other leg and see what happens. This was my first reaction and the white bump was rather large. (Maybe 2″) wasnt ichy or anything, but I put ice on it right after. All my other injections were fine! Not even redness!

I’ll let you know how tonight’s deeper needle goes! Lol

Thanks all!


hels99
3 years ago

I’ve been on Copaxone for three months. I get hives straight away followed by a hard bump about a day later that lasts a couple of days. I think it is just a mild allergic reaction. Interesting what people are saying about legs – I’m not muscular but getting worse reactions there. I’m still on the daily dose and waiting too.


samanthastyle
3 years ago

Hi everyone!

So I just did the exact same spot (upper thigh, towards tummy side) on the opposit leg and used a deeper setting on the auto inject and no reaction!

I feel like those big white marks might be caused by the needle not being deep enough… Causing the medicine to sit on top of the fat rather than in it… (Well, at least for me!!! Everyone’s different of course!)

Yes it still stings but no redness or bump! (Will probably feel like a bruise tomorrow as they normally do… But doesn’t actually leave a bruise!)

Next weeks thigh will be an auto inject depth gamble again since it’ll be in between the upper and lower LOL!

But thank you everyone for your ideas. im still working my way up to manually injecting. Seems scary to me but I’m sure I’ll try it sooner or later haha.

@avengr13


janep
3 years ago

I was on copaxone for a couple of years and used to get horrible reactions like bee-stings on my legs. My ms nurse noticed that my leg was really cold when she was checking the latest ‘bumps’ so she suggested that the hard lumps that were appearing a few days after the injections were where the copaxone wasn’t dispersing properly. She therefore suggested that if I used a warm gel pack on the site before I injected it might help it disperse and not collect as badly and it did seem to help a little. So I used to use a warm pack before a leg jab and then a cold pack on any itchy lumps! Plus, it does take a little while for your body to get over the shock and insult of the injections so hopefully these reactions will ease off for you soon, good luck xx ps I was never brave enough to do manual injections with copaxone but ended up having to when I switched to avonex as they didn’t automatically send an autoject and with hindsight, I think my body would have reacted a little better to the copaxone if I hadn’t fired it into my leg at such high speed! Even after two years of daily jabs it still made me jump every time!


isaacson72
3 years ago

I get the lumps on my arms & legs. I was told to wait 24 hours, and then I could gently rub on them. If I don’t, they get redder & hotter, like they’re infected. They’re not I don’t think, but anyway I do that after 24 hours and it goes away. No issues with my hips & stomach. The bumps I get are different on each body part – on the arms, lasts all day but only hurts/burns for about an hour or so. The bump is there for 48 hours though. On the leg, the bump lasts about 3-4 hours but again, only painful for about an hour (although if I do a lot of walking, when the muscle contracts it’s a little odd-feeling but not really painful). With both locations, I can see maybe 2-4 tiny bumps right away, then they morph together into one big one within 10-15 minutes.

But the legs. I wouldn’t go any deeper than you are now, unless it’s leaving a little bit of medicine on the top of your skin & it itches a lot right afterwards. I have hit muscle in my legs 3 times and I STILL get shaky and freaked out every single time I do my leg shots. It hurt like hell for about 2 hours solid. Copaxone doesn’t like muscles. Now I have the right depth setting on my autoinject, and it’s ok although still more painful on my leg than anywhere else. Always takes me a few deep breaths before I can do that shot.

While I was on vacation last month, I had my mom (a nurse) do manual injections. I didn’t notice any difference. I also stopped using a warm or cold pack before/after the shots too, as I didn’t notice a difference with or without. Everybody is different though so play around with all of that stuff & find whatever works for you!


avengr13
3 years ago

@samanthastyle well I have finished my 5th injection with the auto-inject. I am very susceptible to any new medication but so far so good. I have injected both my arms, tummy and both thighs. Only once did I get the bumps at the injection site because I think I did not quite go deep enough. Every other time a red spot the size of a nickel and a drop of blood at the center. A little discomfort at the site for an hour and then none. No headache, no other side effects. I could be the Copaxone poster child! ?


mrtuts
3 years ago

I was on this treatment for a year and couldn’t inject my legs either… it means 2 sites down but my legs were too painful and I couldn’t walk after the injections. Itchy red lumps the size of my palm, and i have big hands, no matter how deep I went, I found no benefit from Copaxone but everyone differs. Best of luck.


heidi1888
3 years ago

Hi I’m heidy been on Copaxone for 8 years . But was very unwell at start of year . My neuro suggested I try tecfeder what I did . I called my Ms nurse yesterday begging for my Copaxone back . Happy days as wheels in motion will get new prescription in 3 4weeeks . I was kinda ok with low dose but last week when I took my 1st double dose omg I felt ill my temperature raised looked like sunburn was constantly feeling ill and crying all the time short tempered. I got my gp out yesterday. I have an infection ? so not helping with symptoms of tecfeder.. I have thowen in towel after 1. Half weeks . Just glad to have my injections back . My partner used to inject manually . I used my pen after 8 years on last 3 weeks I pulled myself together and was able to Inject my legs manually. I could do my tummy no bother but the thought of putting a needle in my leg turned my stomach. I done that every day for 8 years . New prescription 3 times a week stronger dose but can’t wait till they knock on my door with it . Very soon . I’m in bed for the foreseeable week if not more . On antibiotics still feeling sick dizzy hot and cold and not much of an appetite. When I 1st used my Copaxone. And I’d get hot red bumps I’d get a cold pack sit it on it fir time required. I’m still doing silly things like that till this day . Av injected muscle and it’s been agony . So a cold towel cold pack helps . Hope this helps u good luck . And I promise it gets easier every day ???cxxx


samanthastyle
3 years ago

Hi @heidi1888 thank you for your message!! I’m happy to hear your getting back on Copaxone. At least you can say you tried the pill! The side effects of Tec. Worried me so I decided on Copaxone too. I’m happy to hear such good things about it – especially since you were on it for 8 years! Was it working 100% for those 8 years? Any relapses or new leisons over the years?
I’m still getting used to the shots. My arm is KILLING me right now. It feels like I spent 5 hours at the gym. I don’t understand why it hurts my muscles so bad… I talked to the Copaxone nurses and they said I would feel it immediately if I hit a muscle and i really don’t think I have hit one… So I’m just confused why it hurts so much the next few days!!!


samanthastyle
3 years ago

My arm hurts so bad it kept me up last night! I guess it feels more like a “growing pain” than a sore muscle.


rhymeelf
2 years ago

My neuro switched me to Tecfidera after a relapse. After about a year of trying it , reacting poorly and lowering then upping the dose I finally stopped taking it and am back on Copaxone. Tecfidera not only gave me an unhappy digestive system, it also gave me increased anxiety. I was having trouble making decisions, would be close to tears during events that used to be no big deal. It was super embarrassing at work. I didn’t feel like myself. I felt incompetent. Neuro tried telling me that it was that I was stressed bc I had MS. Or that I might be peri-menopausal… But 2 months after stopping the drugs I am happy and back to my old self. Like a fog has been lifted.

Learn to listen to your body. 🙂


potter
2 years ago

Everyone react differently to DMT’s, I took Rebif shots for 5 years and I always felt like I was getting over the flu. My insurance company had just decide to help pay for Tecfidera when I developed skin rejection of the Rebif. So I tried it and had the typical stomach issues for three months but learned how to deal with them. I never had any flushing and I feel like myself before I was diagnosed with MS. So don’t let the side effects of a drug put you off , they all have their problems. You can try a new treatment and it it doesn’t work go back to the old one or try another one. I am starting my 4th year on the Tecfidera. Potter

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