I have been reading a few articles about coming off medication. I have read an article that there is evidence if there is no obvious progression of MS and one has been on medication for about 12 years, then coming off medication has not made it worse for most of those who have done it. My neurologist says there is a study going on about that where I am located . In general they say there is evidence that if there is no obvious progression of MS Symptom wise or by MRI,and one has been on medication for about 12 years and is over the age of 65, then coming off medication has not made it worse for those who have done it. 13 years ago I had a major setback which led to my diagnosis and since then, no progression. When I was diagnosed there wee no active lesions shown an MRI ( just a bunch of inactive ones) and 13 years later having another MRI with no active lesions, ( unfortunately my neurologist at the time did no MRIs in between 2005 and 2018,)I decided it was time to take a break from medication which I did a couple weeks ago With my MS neurologist’s blessing, and I’m only hoping nothing will change;if it does I will notify my neurologist immediately.
I have a daughter, the only one in my family who was also diagnosed with MS At age 20,three years before I ever found out I had it, and who after 12 years has also come off her medication and she says she feels a lot better than she ever did. She is in her 30s.
I don’t recommend this for everybody and it does come with a risk but at this point of my life Now that I’m 71, it’s a risk I’m going to take.
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