Last reply 4 weeks ago
Can't turn over in bed

Since getting numb lower legs I found if I lay on my back in bed keeping legs straight..its impossible now to lift legs up off bed..i try one then the other..no solid weights won’t move! Now this last week I can’t roll over off my back..i have to draw knees up and flop knees over if I want to get on my side..my nurology been aware of numbness since January..he said could I turn over in bed ok? At time I could..i can’t now..anyone else have this issue? I have poor mobility..and balance often fall backwards standing still too..carole.

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stumbler
1 month ago

@caroleroberts , I share your problem. When I go to sleep, I don’t move from that position. The heavy legs make getting out of bad a nightmare, which on occasions has taken up to 3 hours!!!!

Contact your MS Nurse to arrange an Occupational Therapist (OT) referral and see what they can offer to help.


caroleroberts
1 month ago

Thank you..i did wonder if too..at least put them in picture if nothing else..my next appointment is november/December. I’m finding now well for few months getting out of bed I can’t just stand up..i have to sit on side of bed to get legs ready to balance..if I get straight up I fall back down no leg strength.


caroleroberts
1 month ago

Stumbler…are heavy legs part of what I can expect then now? I have limited mobility last 18months getting steadily worse..i can’t stand in queue or fatigue gets legs and I wobble and legs go! Walkinh is approx every 20 half stride..ive no proper gait now..so approx every 20 steps I need rest briefly and try bit further..my legs get sooo heavy I 5hink it’s the numbness and I stagger like I’m drunk..looks awful..one short trip to Tesco express and I’m worn out with fatigue and can’t do a thing rest of the day.


itsmewithms
1 month ago

I actually do this exercise every day with my right leg, just lifting it off the surface of the bed and moving it right and left. I was equating it more to my hip replacement than MS but my right leg is just heavier than my left…like it is made of lead and the other of wood…it gets a bit extra PT…


stumbler
4 weeks ago

@caroleroberts , heavy legs are indicative of MS. They’re not really heavy, it’s just the muscles getting “lazy”.

A Neuro-physio assessment would be useful, to understand what is and isn’t working. Your MS Nurse should be able to refer you.


rob_woodhouse
4 weeks ago

@caroleroberts hi it sounds exactly the same as I am I have spms and have been told I have overactive quad muscles and a weak hamstring so my left leg is ramrod straight and won’t bend at the knee I’ve tried every concoction of pills and stretches to no avail I would be much appreciate any tips.
Keep on keeping on 😤😡🤯🤬


caroleroberts
4 weeks ago

Ok. Well thank you all. I had another set back yesterday..i was sort of getting up stairs ok..not now..i can hardly lift legs! Hard heavy work! So rang nurology and consultant going to ring me Sept 28th….ok long wait but so be it…nurology nurse asked if my condition was frightening Me? I said no..ive had neuropathic night pain and limited mobility 18months..just want right meds for correct diagnosis.


rob_woodhouse
4 weeks ago

I am more than frustrated at the minute for the exact same reason

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