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itsmewithms
2 months ago

Sleep is one of my issues too…thankfully not getting to sleep but staying asleep and waking too early. It’s been an issue for some time and was the health issue I felt was the most important a couple years ago in a “health assessment” done for work and part of my insurance bonus program was doing a “sleep course” with the Sleepio program. It stressed a lot of sleep hygiene issues that really are helpful, I suppose, but didn’t really straighten me out fully. Not sure if you have tried the common things like improving your sleep environment, no blue light in the room, no computer screen for at least a half hour before bed, stretching, warm milk or tea, guided imagery, meditation, etc. There are a lot of tricks like that. One thing that was useful for me is that if what you are doing isn’t having an effect after like 30 minutes then to stop trying to force it…move on to the next trick or take a break from trying to sleep. I’ll go down to our exercise room (so I don’t disturb anyone) and stretch and watch a show. I usually have a book to read next to bed and when I wake up I try to be positive and think “oh good, I get some undisturbed time to read” and within a half hour am ready to sleep again…just yesterday I found a facebook group of people that take Ocrevus (as I do) and staying asleep was a common issue in the crowd! so it could also be tied to the DMT? and I know sleep is just a common MS issue overall…it can be so frustrating but letting it frustrate me only seems to make it worse πŸ˜‰


jayjay10
2 months ago

@itsmewithms

Thank you for your response.

It is quite incredible to have read what I just did from you, the tricks that you suggested are ones that I kind of set out in my day to day routine. Stretching and gentle exercises have always been suggested to help ones sleep as it is a muscle relaxant depending on which ones you do and how you do them. Tea is filling my stomach up on a repetitive basis. πŸ˜‚ There is no other drink I consume than tea, it is such a rarity for me to absorb coffee or alcohol these days as it normally disrupts the pattern of my bladder movements. I don’t even drink water and that really should be a must, for everyone. MS or not I know I should be piling in the water.

I will keep on my Amitriptyline and try to stretch a bit more, I’ve never been much of a reader as I just don’t have the patience for it. πŸ˜‚

All the best!

Jay.


stumbler
2 months ago

@jayjay10 , see if there are any suggestions here which might help:-

https://www.mstrust.org.uk/life-ms/wellbeing/sleep


jayjay10
2 months ago

@stumbler

Thank you for your link that provides help and advice, greatly appreciated.

Jay


itsmewithms
2 months ago

Yes, I figured you were already trying many of the “tricks” πŸ˜‰ I stuck with the “sleepio” program as I got an insurance kick back but really didn’t think I improved much due to the program. I was in so much pain from my hip (this was post replacement but it still made sleep difficult and finding a good position almost impossible) and it really doesn’t address not being able to sleep from pain. It also didn’t really get into if you have a disease that makes sleep difficult to maintain as, obviously, MS does…ughhh. I also heard in an interview yesterday that since our body “repairs” during sleep and MS people have alot of repair to attend to that we should get more like 8-10 hours of sleep! If I get 7 hours I think I have done good! I’m surprised that neuros aren’t all over our sleep habits and helping us get more sleep…mine said I should talk to my GP about sleep…I told him that until he can “cure” MS he should help me at least manage it and sleep is, obviously, an issue for people with MS. Reluctantly he gave me a prescription for Ambien but I really didn’t like it so only tried the sample and stopped. It didn’t help me stay asleep but I just felt like crap when I woke up after not sleeping long enough.


chezy17
2 months ago

Sometimes, stressing about sleeping stops you from sleeping πŸ˜‚πŸ˜‚. I’ve found that if I’m trying to force my tired butt to sleep I can’t sleep or don’t sleep well πŸ€¦πŸ»β€β™€οΈ. A routine helps, sleep meditation helps me as well as the ocean sounds I’ve mentioned before. Perhaps you’re drinking too much tea, the caffeine in that won’t help you sleep?


jayjay10
2 months ago

I often spin and turn in bed just wondering when I will finally get into my Freddy dream. πŸ˜‚ I don’t have a routine, each and every day brings something different so I may have to adopt to try a new pattern and routine to become a custom to. I drink black tea all day everyday. Half a sugar, bit of milk and I’m sorted. 😜 few biscuits too.

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