Last reply 6 months ago
Bad day

Today is a bad day. I’m so sick of waking up and something hurting each day. Ever since my diagnosis in December I feel like my body is packing up on me. My skin is wreaked, my hair is a disaster, I keep getting toothache. And all I want to do is cry. My husband thinks its psychosomatic/stress. I’m still waitkng for another MRI to decide if I need treatment. Just wanna feel human again. Sorry for the rant but needed to get it off my chest and can’t tell friends and family as they will worry. X

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grandma
6 months ago

@pinny Rant all you want, that’s one of the things we’re here for🥊 When I was dxd 26 years ago they knew wat it was before the first time but they didn’t tell me, standard practise all those years ago. I relapsed badly again 4 months later and they finally told me what it was. Spent 3 months in bed with the family never knowing if mum was ever going to get up again! I did and you probably will, recent diagnosis means that everything is going on at the moment. You will eventually sort the ‘wheat from the chaff’ and find what works for you. Your neuro will decide on treatment if you need it and you can then come back to us and ask anything you’re not sure about. Remember, with ms there’s no such thing as a silly question🤙😜😍


stumbler
6 months ago

@pinny , you’ve done the right thing in writing it all down.

You write it down, then forget about it and get on with your day.

You’re still newly diagnosed, so you’re still trying to understand how to move forward. Just be patient with yourself. These things take time.


vixen
6 months ago

Hello dear @pinny. This is so new for you, it’s really going to take a while to sort out how you feel, and get a greater idea of how things change and shift from day to day. Don’t lose heart, this is a really tough time, but it will get better. You need to accept that you need to allow yourself recovery time. For rest, for the best diet and exercise you can manage at the moment, and for your emotions to gently unfold. There are so many people of Shift, and we all understand and appreciate what you are going through. Your skin and hair can be fixed. Focus on all aspects of your wellbeing, and you can start to climb out of this mire. And keep posting and ranting! X


dramaqueen
6 months ago

You’ll go through many emotions its allowed. But remind yourself what you have. xx


potter
6 months ago

First thing you need to do when you wake up is to hug your husband or your child then pet your cat or dog. This will get you out of your head for a little bit, then do some tai chi or some yoga. This has been my routine for the past 11 years since I was diagnosed. I have a cup of coffee and take my supplements and I am ready for the day. Potter


paige_wheeler
6 months ago

I was depressed for several months when I was dx. Finally I took charge with diet and exercise (at YMCA in the pool) That’s how I felt better. It is quite a slap in the face and ALL symptoms are real. And you will have limitations. It took bring my daughter and husband to the doc with me so they could hear from her what to expect.

Just remember it is not a death sentence even though it feels like it.

You have MS but MS does not have you.


nutshell88
6 months ago

The pain started with me 3 or two years after diagnosis and it still remain
Its spasm in my legs


cosine
6 months ago

@ pinny maybe choose someone from your friends / family to tell . It really helps . If you choose the right person. Not everyone reacts the same. Some people are so good at being supportive and understanding.


chezy17
6 months ago

I agree with the talking to people about it, especially with friends and family. I talk to everyone about it, it’s how I deal with it all.

Remember, not everything happening in your day is bad, focus on at least one good thing. Find the rainbows always, it’s still new and everyone goes through this but answer me this…do we give up and focus on the negatives or we do we get up and say right f#%# this shit!!!

Surround yourself with a good support network, go get a facial and a new hairdo, honestly that can be fixed. Take care and smile 😘. X


angie82
6 months ago

When I was diagnosed we left the hospital, my husband carrying me whilst I sobbed. We sat in the carpark. He said that it was time for me to be looked after and that I needed to put myself first, starting with replacing my broken handbag! So he dried my eyes and we went bag shopping. He also brought note books for all four of us. We could all write each day how we are feeling, good and bad, questions we have, worries, and if we wanted anyone else to read it then we could leave the book on the pillow of the person who we want to see it.
It really helped. When I read back, it was quite a dark scary time. 15 months later, and I feel very different, I’m positive, we’ve made a few changes. But on the whole our perspective on life is brighter than before ms.


angie82
6 months ago

Also, I got a dog, I think that helped me the most!


pinny
6 months ago

Thank you all for your replies. I’m trying to keep positive and take care of myself. It’s all just a bit of a blur at the moment.


cameron
6 months ago

Now you have a diagnosis, you DO need treatment! I hope your neuro isn’t telling you otherwise…. Lots of really positive comments here and sending you hugs across the ether. xx

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