I focus every bit of my energy on finding something positive in and hopefully getting others with our disease to understand we still have a life first and by the way we have MS. We’re all on a journey that takes us in different directions same as our treatments.
I’ve had MS for > 20 years and in 2018 diagnosed went from RRMS to SPMS. I have limitations but I try to live my life at peace.
I always stress that I had to learn I don’t have MS by myself. It effects everyone I care about too. I began sharing it with my wife of 31 years through these posts.
I focus every morning when I wake up on something that is good or I have achieved in my life. I always use that inner strength to get up no matter how hard it is but focus on my first thought not MS.
I have been going to a weekly bible study with some friends at church. I try not to bring God into my discussion with those that are in a true emotional and physical battle with their MS. Society isn’t as accepting to the power of God. My faith is growing but I want others to find an inner strength for their peace. If it’s God, music, meditation, yoga .., find something.
This morning at church the pastor used my drive to find peace for others with MS as an example of loving your neighbors as you love yourself. I was a bit surprised and deeply touched.
I have had some dark quetioing times, fears, depression…, over the 20 years. But I truly believe I’ve come out of that fog by not being the “man that can fix everything and not share his emotions.”
Give it a try think and focus on something other than your MS. Talk about it to someone that cares about you. Even if just a start on shift.ms.
Your central nervous system has MS but your live shouldn’t be controlled by MS.
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