Last reply 5 months ago
Alternative to Gabapentin

As most of you are aware, I suffered from a relapse two weeks ago. I am still in hospital after the MS seems to have affected my walking to virtually zero (I am now in a wheelchair) and I am waiting on a space at a nearby rehabilitation unit.

Since my admission, the doctors have stopped all my Gabapentin – it seems that I have had some dodgy liver results and after an ultrasound they seem to think it is the increase in the dosage from 200mg x3 a day to 400mg x3 a day. I’m not so sure as I have been on 200mg x 3 a day since the end of March?

Anyway, I was wondering if there was any alternative I could mention to the doctors on Tuesday (it is Bank Holiday weekend) as I am still in pain and my pins and needles seem to have increased? If there is, or if anyone has been through this similar situation, if you could let me know, that would be great!

Thanks and have a great Easter weekend 🙂

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stumbler
5 months ago

@enxsjp , there’s some alternatives detailed here :-

https://www.mstrust.org.uk/a-z/pain#how-is-pain-treated


dominics
5 months ago

I didn’t get on with Gabapentin. Instead I take Duloxetine. No harm in asking about that.


enxsjp
5 months ago

Thanks @stumbler and @dominics – I was put on Gabapentin via a physiotherapist, however I have been taken of it (presumably for liver problems) by the ward doctor, who as far as I can tell are more concerned with muscular pain than with nerve pain. I have to ask them about this when they return on Tuesday as not only was it helping the pain, it was also helping a little with the pins and needles.

Thanks for your help and I will ask about both.

Have a great Easter weekend.

BW,

S


dramaqueen
5 months ago

Have they given you intravenous steroids to get out of the chair and try walking with a frame ? I take baclofen to relax my legs but not pain. best wishes, x


enxsjp
5 months ago

Hi @dramaqueen

I’ve had IV steroids for 4 days at the beginning of the relapse (approx 2 weeks ago). The steroids helped with the weakness of the top half, slurred speech and keeping me awake. However, my legs are pretty much the same since I have arrived – not great signs I know.

Physio have been a few times, I can stand for a very short period and after 3/4 tries of this I am in a lot of pain and shattered quite honestly. I can’t move my left leg (just won’t behave!) and my right has got weaker too. I also suffer from vertigo, associated nausea and some ataxia as part of my MS.

Tried a walking frame and couldn’t do it, legs just were not having any of it, hence the chair. I’m hoping the rehabilitation will help, but we have been told that we may have to adapt our home – but it’s too early to tell yet.

I hope you are well and having a lovely Easter weekend 😀

Best wishes,

S


dramaqueen
5 months ago

For now your MS is not behaving but being so early into a relapse things may improve. I know its a bitch and pretty scary but dont write yourself off yet lol time is a good healer and although i have never had relapsing-remitting MS mine was always progressive many on this forum will explain relapses can last some time. Good luck with the rehab your fortunate to get one to one treatment. Take advantage! Remember your frame of mind also helps believe in yourself. You can do this. x


enxsjp
5 months ago

Thanks @dramaqueen. It really helps to have a forum like to to talk to people who “get it”.

I have to keep positive (it may not sound too well in my posts but I am 😀) I think the hardest part is not knowing when I am going to go home to my family. I know no one can tell me that or how long this relapse will last – the neuro is also worried it might have been the infection itself rather than the MS, but he can debate that with my MS neuro. All I can do is wait and do what the experts tell me, although I wish they would give me something for the pain – codeine is just not cutting it.

Thanks again for listening and taking the time to reply. It means a lot

S 💪


dramaqueen
5 months ago

It sounds like you are in a good place mentally and physically i hope for a better outcome for you. Any infection or virus knocks us for six . The waiting game is so unpredictable. The good thing is that disease-modifying drugs exist now unlike when i was diagnosed 29 yrs ago. I suppose the doctors are reluctant to deal with the pain because of the liver but there must be some meds. I wish you well and hope you get answers but know we are here to help you through this difficult time. If only in spirit. x

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