Last reply 1 month ago
Advice on getting PIP for fatigue

I am in the process of applying for PIP and have completed the online mock PIP tests on the Benefits And Work website. All the questions seem to be geared towards assessing mental illness and physical disability though. Non of them seem to assess fatigue, which is my main symptom (especially on bad days) and what is making it practically impossible to work.

Has anyone had experience/advice on gaining higher rate PIP with fatigue?

Many thanks

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bullman
1 month ago

@joshd You must consider that pip looks at how you are affected on the majority of days. Fatigue could be classed as a mental condition.


stumbler
1 month ago

@joshd , also consider “Access to Work” as another scheme, which can offer assistance, which might help your finances :-

https://www.gov.uk/access-to-work


joshd
1 month ago

Thanks guys. Have either of you got jogger rate PIP? We’re you assessed in person. If so, what were your experiences?


bullman
1 month ago

@joshd what is jogger rate? I have had assessment visit plus paper based assessment. I have had PIP many years. I was PIP assessor for many years until ILL health retirement


joshd
1 month ago

Apologies, I meant “higher” rate PIP. I am just wondering what in-person assessment I might be subject to and whether they have a knowledge of ms related fatigue and how physically limiting it can be. When I did the mock assessment online there seemed to be barely (if any) questions related to fatigue and transient symptoms related to conditions like ms where you can have good days and bad days and your ability to function can change from one hour to the next. A lot of the questions which would qualify you for the higher rate PIP band seemed to be related to severe physical and/or mental disability like paralysis or mental disorders which don’t really apply to earlier stage RRMS. Yet I still can only work on average 2-3 hours a day and so can’t hold down a job and need the higher rate PIP.


cwe33
1 month ago

@joshd

I went for an assessment and similar to yourself, fatigue is definitely my worst symptom, followed by issues with my leg left. The assessment was general questions about daily tasks, similar to what gets filled out on the forms.

I was rejected. Apparently I have more better days than bad. The interviewer also noted that I didn’t look tired at the interview. I was furious at it.

I haven’t appealed it as don’t want to put myself through it all again. I’ve been diagnosed nearly a year and find it difficult to accept it myself, so being rejected made it worse.

Good luck


colettepage
1 month ago

Hi @jioshd, I have recently been awarded pip although I have many symptoms besides fatigue. As others have said, you have to describe how your fatigue affects you in every way – you can’t go out, you can’t prepare a meal/ drink/ wash/ dress/ socialise/ work/ walk, literally link it to everything. I suppose even down to it stops you being able to plan a journey/ deal with money…. I was advised when completing the form you must write as though you suffer this every day! Describe yourself at your worst. Good luck, Colette


joshd
1 month ago

@colettepage. Thanks for sharing. So they didn’t grant you any PIP at all? Not even the lower rate??


joshd
1 month ago

Sorry, I meant that reply to @cwe33


watsoncraig
1 month ago

@joshd PIP (enhanced level) and ESA (support group) here and used CAB to fill in the forms, use them,they are great


cwe33
1 month ago

@joshd

Yep, I didn’t get any PIP. I’m in employment but was advised to apply. I have struggled at times with work. I maybe never explain the full effects on my symptoms, find it difficult to put it in to words. Maybe CAB can assist you, I would probably go down that route


stumbler
1 month ago

There’s a couple of messages coming out here:-

1. The DWP don’t really care what you’ve got. It’s what you can’t do! You need to understand this so the application form can be completed “correctly!.

2. It can be difficult to admit what you can’t do. We’re an optimistic bunch, but you have to use an objective approach. This can be very hard and is the reason why an experienced third party, e.g. CAB, should be utilised for their expertise and objectivity.


joshd
1 month ago

@watsoncraig @stumbler thanks. What does CAB stand for? I googled it but couldn’t find.

@stumble regarding your first point, I understand the questions are all going to have to be answered “correctly” during the initial phone assessment with DWP, I’m more inquiring as to what will happens and how I should deal with an in person assessment should I have to have one. Because if I have said I can’t shower without an aid or plan a journey (on a bad day), and then I get in the car and show up for the in-person assessment (on a good day), I have clearly planned a journey!


stumbler
1 month ago

@joshd , CAB is the Citizens Advice Bureau. You were right to pose this question as we assume that it is a known acronym.

The face-to-face assessment is just a “tick box” exercise. They have to check the facts about what you can’t do.

Yes, you are quite correct that arriving alone does tend to undermine your “can’t plan a journey” argument. So , you need to plan an appropriate response in advance, e.g. on a bad day, you would have asked a friend/family member to take you.

The more documentary evidence that you can supply, to support your case, the better.

I recently applied for PIP on behalf of my Brother-in-law, whose suffering “cognitive impairment”, i.e. he’s presently “losing his marbles” and is in a dreadful state of not being able to do much for himself. The application form was completed objectively with the “can’t do’s” and was accompanied with copy correspondence from Counsellors, Neuros, Dementia Assessors, etc..

He had a face-to-face assessment at home and was unfortunately able to “play a blinder”. He was awarded enhanced care AND enhanced mobility, without need for Mandatory Reconsideration. He now gets more than me and I’m housebound!! (To be fair, I haven’t updated the DWP about my condition since it was granted in 2005. My MS has progressed markedly in that time!)


heather_wark
1 month ago

Josh d I don’t think you would get the higher rate pip because off your fatigue. I have second progresses ms ,had a stork and waiting for open heart surgery and I just get sanded pip . Then I had to fight for it as I was on
DLA but when it went to pip they took it off me . All because a nurse came out to my house sat down and the first words that came out her mouth was , I don’t know anything about ms . What the hell was she doing come out . I reel on my husband for everything and he isa wonderful man I also have a good daughter and lovely friends which will help me .
Good luck with it josh and I hope you get sorted


bullman
1 month ago

@stumbler You haven’t updated the DWP. Tut tut. Now is possibly the right time.

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