Last reply 9 years ago
3rd time luckly???

Hey all, just started my 3rd dmt rebif after comin off copaxone because of that horrible side affects of that drug after injectin, just wanted a little advice on rebif 2 b honest side affects etc……….

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sooty
9 years ago

Hi Abby, well been on it for about 6 weeks and will go up to Rebif 44 in a week.No reactions on the injection front.I do feel very tired though and have had some headaches.Everyone reacts differently so keep going.I look at it like painkillers, some people can’t have asprin but can have paracetamol.They all do the same thing but are different drugs.
Take care
Sue


ghada
9 years ago

What side efefct of copaxone made you change?x


Anonymous
9 years ago

i kept havin them post shock reactions bout a min after the injection my heart wud race so fast i couldnt breath i was really dizzy my arms went bright red and so did my face this had happened bout 4 times and in the end i was to scared to inject anymore i actually felt i was gonna die it only lasted for bout 2 mins but it was the worst 2 mins i was gutted i thort that dmt was workin 4 me x


ghada
9 years ago

tahts a shame hun, i had that once so far but to that level. I did start on rebif but it didn’t agree with me…everyone is different but i do know a few who have found it fine, they are just strict with taking ibuprofen about 20 mins before injection and before going to bed. The needle is alot smaller that copaxone!
x
Hope


Anonymous
9 years ago

not on the full dose of rebif yet but hopefully this is better if not i suppose give up or try another x


tones
9 years ago

I’ve just been told that my anti bodies are way to high and the rebif (low dose) I’ve been on for a 14 months is no longer working. High dose will just produce more anti bodies. Didnt anticipate this 🙁 – The rebif caused flu like symptons intially but a couple of nuerofen before taking it ment I was relatively side effect free – Not sure what other DMD’s will do to me but its likley I have to make another un-advised decision on which DMD I want in the near future. Copaxzone side effects sound scary.


mawson
9 years ago

Hi
Was on Rebif for around6 years, have just recently come off as would like to start a family. On the 44ml dose for about a year. Was very very lucky as apart from, at first, feeling tired no side affects. Told can give flu like syptoms, just took pain killers before for the first couple of wereks. Was recommended to do it on a night so you can sleep through any side affects.
Sue


stevedomino
9 years ago

i’ve been on Rebif for the past year – occasional injection-site reactions (redness, itching) but otherwise all good.
once i decided to inject without taking any painkillers beforehand – I DON’T ADVISE THIS! cue a night shivering and aching – not good!


irina
9 years ago

Hey. I just started Rebib on monday, super low dose: 8.8 with a view of going up to 22. So far so good. I get a bit fluey 2 hours post injection but, like lots of poeple have mentioned, taking neurofen or paracetamol beforehand means that it’s easily managable. I also get this weird spaced feeling, which is not unpleasant, just before I get fluey. I wonder if anyone else get this… If the dose you are going on is higher I imagine the side effect will be worse than mine are. Good luck


sooty
9 years ago

Hi Irina, I just went up to 44 on MOnday.All ok except need to take 400mgs of Ibuprofen the next morning too.Got the shivers but once they kicked in not too bad.
Take care
Sue


irina
9 years ago

Hey Sue. Monday is the day to start all good things. Side effects aside, I think we are all mining a good thing by doing everything there is to be done for maximum damage limitation. Hope the shivers go away. x


emmy
9 years ago

Hi Hun,
I was on rebif before I started trying for a baby and found it fine. I didn’t really need to take anything else with it and was pretty side effect free xx

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