@StevenH67 

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StevenH67

1st Ocrelizumab / Ocrevus experience

Hi, just thought I'd share my experience of my 1st half doze from earlier today in order that someone else may get some use from it. 1st half doze completed today in Glasgow. So far, so good. I got out about 330pm. I was given lots of advice by lots of people. Seems to have worked well. Few sweets, packed lunch, lots and lots of water, phone for music and netflix...with obs done every half hour it has fairly flown by. Hope this helps more 1st timers in the future. Feel free to contact me if you want any more details of my 1st experience of Ocrelizumab/Ocrevus. Thanks, hope you're all well, take care and have a great evening. Steven.
@newbie

Hi @stevenh67, pleased to hear your 1st dose went well. I had pretty much the same experience and I had my 2nd dose yesterday. If anything slightly better with second dose (apart from a slightly awkward half hour of drinking water as couldn’t provide a urine sample on demand) as with the first dose I itched like mad and came out in a rash that gave me extra antihistamine for - second dose no adverse effect. My only issue has been night time hot flushes - but no idea if the is Ocrevus, the steroid they give with it - or just the weather! All the best for your second dose too

@StevenH67

Hi @newbie...lol...had slightly similar issue with sample this morning. Wasn't aware they'd request one qnd I'm of an age I need to time my drinks lol. Glad 2nd doze a bit better for you. Sometimes its hard to tell what's MS, non MS or temperature related problems isn't it. Frustrating. Thanks for the well wishes. Hope you keep as well as possible.