Update: I heard from the Dr today. He has spoken with the neurologist I am seeing in October. I have to have a blood test to check my epilepsy medication levels, and he is going to refer me for a brain and spine MRIs tomorrow. Hopefully, I will be able to have those soon. I am a teacher and we go on school holidays next week so with a bit of luck I will be able to get them done then, that way the neurologist will have those when I see her. Feels like progress finally.