Hi @henrietta. Have you been advised on a DMD yet? You could ask for her email as well as phone number; some people do struggle with getting hold of the MS nurse. Ask her how often you will get to see the neuro for routine appointments, and how often to expect an MRI. You could also ask what clinics and therapies are open to you, and how you’d get a referral. This could include counselling if needed, physiotherapy. Hopeflly others here will give you more ideas!