@bobbij One was arranged for me but as I knew it wasn’t needed to make MS diagnosis [that’s the reason sometimes] I just refused it. They were absolutely ok about it and I haven’t been asked again.
You don’t have to have any procedure, drug so if you don’t want togive consent. Like you I had heard from too many people that it was unpleasant. Even if its OK nonetheless its invasive, and carries a risk therefore there needs to be a good reason to have it, in my opinion. At a bare minimum it should be carried out under X/Ray/radiology guidance.
I found out later that the reason for the request is that my treating hospitals uses various data from the lumbar punctures for one or more of their Research projects.