Reply To: Recent diagnosis

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desn
1 month ago

@aaron_holden i found it interesting to read your post… my experience has been similar to yours. Lots of weird bits and pieces until diagnosis when it started to make sense! Cant really offer you any advise on if and when it gets worse as everyones journey if different however my advise would be to def talk to your employer.I did when diagnosed after a week in hospital and they were very understanding.. I work for a large organisation and had an assessment with occ health which was useful. My employer is bound to allow time off for appointments etc and allow me to work from home when necesary. Only down side is when your boss looks at you and says ‘but you look fine’ 😂😂😂 not sure if this is helpful but good luck for the future