Reply To: please HELP!

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henrietta
1 month ago

@dalex Getting diagnosed is quite a shock especially if you’re not expecting it at all (I was initially overwhelmed by diagnosis and I’d been expecting it) so first up I’d say try to relax as much as possible and take your time coming to terms with it. Try to remain as stress-free as possible too as there is a school of thought that says stress is bad for us. As @vixen says, it’s great you’ve found this site, and taking a step back as you navigate your new normal is a good idea.

I find any exercise which makes me hot exacerbates symptoms (don’t know if everyone gets that) so instead of cycling (for example) I swim. I find cold showers help too.

Another useful thing to do is check out Dr Aaron Boster’s videos on YouTube

Anyway hope this all helps