Really shocked to read this. I am 58 and have PPMS though my the consultants are now calling it active progressive. My consultant had no qualms about prescribing Ocrevus once my MRI had shown that the disease was active. He called it an ‘insurance policy’. Without it he expected me to have to use 2 sticks to walk within 5 years before heading for a wheelchair somewhere down the line. Hopefully all that will be slowed down.
Push for a diagnosis and, if you fulfil all the criteria, for Ocrevus. I know that different regions of the country have very different budgets. Maybe i am lucky with where i live.
First full infusion in 2 weeks’ time. Good luck!