That’s rotten. It’s hard enough when you’re recently diagnosed. I’m a wee bit further down that road- diagnosed 4 years ago. At the beginning I wouldn’t take anything to help- now I take anything that’s going. Help with stairlifts etc isn’t means tested- I’m a teacher. Once you see an OT ask them. Also try Access to Work when you go back to work. They provided me with an electric wheelchair to help me get around at work. As long as you’re working you’re paying tax! That’s the way I look at it! I work for a local authority and they paid some of it and Access to Work paid a big chunk. There’s more help available than you think there is!
Let me know if you need any help.