Welcome to MS Reporters. Our huge video library of content has been made by MSers asking your questions to the relevant experts – and there are new videos being uploaded all the time. Choose from over 100 videos of leading experts answering the questions that matter to you from MS centres across the UK and around the world.
We know our community are a curious, supportive bunch, from tips about handling fatigue to questions around choosing what treatment to take – the videos cover a huge range of topics. We’ve armed some of our MSers with microphones and they’ve gone out to get the answers you want hear from what a neurophysio does…to the latest research in developing a treatment that might help remyelination.
Watch the video below to find out more.
Why are you doing this?
We spotted a gap when it came to MS Research in 2012. There was lots happening in new treatment developments but this wasn’t filtering down to the community so we wanted to work out a way we could bring the researchers closer to MSers and break down some communication barriers.
The people in the know are super busy and difficult to reach so how could we get a bit of what they know to our community? By making it as easy as we can.
We armed Marlo, Kelly, Chris, Mariam, Polly and Robby with mics, egg timers and their phones and sent them out to interview some of the MS team at Queen Mary University and Barts and UCL. Here’s the link to their content.
We didn’t stop there, we got great feedback about the videos and lots of you told us you had more questions about all things MS. And since our motto is For MSers By MSers, we went big. We now have over 25 MS Reporters across the UK and now around the world, who are at the ready to approach a range of experts who with with MSers.
Over 25 academic and medical experts have taken part from Anne Rowling Clinic and University of Edinburgh, Barts and the Royal London NHS Trust, Leeds Teaching Hospitals NHS Trust, National Hospital of Neurology and Neurosurgery (Queen’s Square), Salford Royal Hospital, Walton Centre in Liverpool. Big thanks to those centres offering their time and knowledge.
Who are the experts?
We have a wide range of MS experts many of whom work on a daily basis with MSers and others who spend their time in a lab uncovering the next treatment. No question is too big for our experts. Here’s the full list of roles: MS Nurse, Neurologist, Neuro-physiotherapist, Neuro-psychologist, Occupational Therapist, Pain consultant, Physiotherapist and Researcher.
MS Reporters is part of Shift.ms’ Relevant Reporters programme. We know the value of having this level of knowledge to our community so we wanted to see how it could work in others. So we’re working with Join Dementia Research which is national service aimed at recruiting people for suitable research studies and their community champions and identified a gap in content in questions for researchers to persuade people to sign up.
We’re also worked with Shine Cancer Support, aimed at adults in their 20s, 30s and 40s who have experienced a cancer diagnosis. Their questions were aimed at experts who could help with lifestyle questions about insurance, fertility, sex and employment.
We couldn’t do all of this without the support of the Wellcome Trust, who have funded the MS Reporters from the pilot and will continue to do so for the next few years.