#limbo-land - Shift.ms

27 Aug 2019 19:21Last reply 25 Aug 2020 20:04

Newly Diagnosed.. I think

Feel like I’m in limbo land at the moment which is frustrating. I have an appointment with my neurologist on 20th Sept to discuss my lumbar puncture results, although he’s sent my GP a letter with results and copied me in. MRI showed 4 lesion on my brain Lumbar Puncture confirms “multiple oligoclo...

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@Aaron_Paul

20 Apr 2020 12:05Last reply 21 Apr 2020 15:45

Intro

Hey! I'm Aaron I'm 36 and currently in limbo land. Been having weird sensations in my hands for years and bouts or extreme fatigue but since january this year a whole lot of other weirdness happening to my body. So I'm under investigation and due to the covid 19 situ not getting anywhere fast. So a...

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@Yusuf_Hassan

15 Apr 2020 17:06Last reply 16 Apr 2020 13:08

Dx atypical ms/ seronegative nmo

Hi when I was 9 I had an attack of ADEM with extensive lesions in the brain and spinal cord, I was treatwd with steroids and had made " a very good recovery" then years later when I was 17 ( November 2018 attack)i woke up with blurred vision in both my eyes ( bilateral optic neuritis) they had told...

1

@georgiaolivia

22 Oct 2019 20:51Last reply 24 Oct 2019 02:31

Tremors

has anybody experienced tremors early on? I’m currently in limbo land and have a tremor in my hands when I’m holding something / picking something up or if I hold my hands up in any way really. I also have it in my legs, sometimes it’ll just start shaking for a couple minutes and go but it’s always ...

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@TheQuietLady

13 Feb 2019 11:17Last reply 14 Feb 2019 09:38

Finally Diagnosis!

Yes I am finally out of Limbo land! Got email yesterday saying the MDT team had reached consensus that I have MS and should be treated with alemtuzumab or ocrelizumab. Thus I need to look these up, whilst it was uncertain I didn't bother and now it seems urgent! And also reply to my friends who ar...

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@Lightning87

5 Jun 2018 12:01Last reply 12 Jun 2018 20:55

Joining the club!

Hey all So today I was diagnosed with RRMS. I expected MS a year ago when I started having vibrations down my spine and numbness in my hand. So about 9 months after being referred I have now been diagnosed - thankfully to a GP who listened to my worries and didn’t keep going down the carpal tunnel ...

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@carmfisch99yahoocom

17 Jan 2018 22:57Last reply 23 Feb 2018 15:54

Clinically Isolated Syndrome

Hello, I am new to shift ms. I have been diagnosed with clinically isolated syndrome. I feel like I am in limbo land. I have has normal MRI’s for a year. I have several MS symptoms. MS hug, numbness right side, face, tongue, roof of mouth, L’Hermittes, weakness, severe fatigue, on and on. I hate t...

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@mandy1979

17 Jan 2018 23:17Last reply 20 Jan 2018 21:53

Choosing my drugs.. Help!

Hey guys, I'm looking for some advice on which drugs to choose. I'm all new to this MS malarkey, diagnosed in November past after a bad flare up in August. I never had any symptoms before that I knew off but they found old lesion and two new ones in spinal cord so he diagnosed me then and there. I'm...

5

@RooW

2 Aug 2016 19:23Last reply 16 Jul 2017 16:59

Pregabilin weight gain

Help! I am still in limbo land in terms of a diagnosis (clear MRI but neurologist has ordered LP as have lots of ongoing symptoms and recently had optic neuritis) but have been put on Pregabilin as I was finding it difficult to bare on my foot and experiencing lots of neuropathic pain. The Pregabil...

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@pikilily

6 Mar 2017 08:30Last reply 7 Mar 2017 21:22

Does 2+2=5 ???

I am new to this .... My other history is in my profile bit..so I'll not repeat it all .. but.. Oh my...my brain is working overtime...I think I need to calm down to a riot. I am sitting in Limbo land, reflecting on the conversation with the MS consultant earlier in the week....and as usual thinkin...

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@aggies

11 Oct 2016 12:45Last reply 13 Oct 2016 08:56

To MRI or not to MRI?

Hi friends I had my first set of MRIs done in late August and early September. Brain was done without contrast and was clear and cervical spine was with and without contrast and showed some spots but no definitive lesions. My neurologist wants to see me again in a few weeks and have another set of...

3

@KoffeeLover

23 Aug 2016 12:43Last reply 29 Aug 2016 08:04

Wheelchairs

At the moment my symptoms are worsening every day, to the point where I am mainly staying upright through shear bloody mindedness. I'm concerned that someday soon I will start to have days where bloody mindedness isn't enough. Soooo - does anyone know how I could get a self propelling wheelchair qui...

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@TheQuietLady

27 Aug 2016 15:00Last reply 27 Aug 2016 21:06

Recently joined, CIS, hate the tingling!

Hello, I posted recently to introduce myself, thank you to those that replied! I'm 45 with a diagnosis of CIS, more MRI scans and neurologist follow-up coming in Sept and Nov. I understand from this excellent forum that I am in Limboland and that I should have been offered a DMT. My main question ...

5

@RooW

9 Jun 2016 16:30Last reply 21 Jul 2016 11:17

MRI has come back normal

Hi, I'd really appreciate some advice please. I have had strange symptoms for over a year now (although also have a history of migraines and vertigo going back at least 10 years). Last May (15) I experienced painful hands and feet (both sides) with tingling and what felt like swelling (but never ...

5

@lorraine133

4 Apr 2016 05:21Last reply 4 Apr 2016 06:02

My experience in a poem

Is it MS? In 2008 I was tested for you Poked and prodded through and through MRI, lumber puncture and more Whilst I was fighting my own war One lesion you said not enough to tell How frustrated I was I could yell and yell All I wanted was to know But back to limbo land I had to go Eight years on ...

1

@Sos29

22 Jul 2015 14:57Last reply 22 Jul 2015 20:48

Listen to your body...

Having been signed off work for a month (I'm a week in) I've had lots if time to think (as well as sleep - 6 extra hours a day I've been sleeping) - I have just figured out that our bodies are amazing! Basically (not been diagnosed yet but...) for the last 15 or so years I've had little signs that s...

4

@jyotisharma1

9 Jul 2015 08:43Last reply 10 Jul 2015 16:08

Tysabri and JCV +

Hi, ive had MS since 2011 and been on two amazing treatments (Capaxone and Tysabri which i am currently on) however, ive been tested positive after 18 months - any idea what else is out there if i come off Tysabri? Im in limbo land between 3 options (Gilenya, Lemtrada or Tecfidera) help! all answer...

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@Denisa

25 Sep 2014 10:45Last reply 25 Sep 2014 19:35

More small relapses = less dissability?

Hi guys! I just watched this video https://www.youtube.com/watch?v=OqY-_K1fYJY, shared by Dr. Terry Wahls. It's 16 minutes long. Could you find time to watch it and tell me if what I got from it is true? Am I getting this right: small relapses over a long period of time equals less dissability in ...

2

@Jasminefairy

20 Feb 2013 18:38Last reply 21 Feb 2013 21:08

A step further.

Hi, so I just came back from having my head/spine mri. I can't say that it was a nice experience, it was really loud and enclosed, but I coped. They did all the scans, then the radiologist did one more. So ofcourse, all I'm thinking now is that she has seen something ad wants a closer look. I ask af...

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@axon

6 Dec 2012 21:20Last reply 7 Dec 2012 11:43

Need help choosing a treatment

Hello all Today is a big day for me. I'm finally out of limbo land. Now I have a label, and it reads: RRMS. Yay! My neuro presented me all the available treatment options, their efficacy and side effects, his experience with each and every one of them, and now wants ME to choose the one the I'd ...

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