#healthy-living - Shift.ms

10 Mar 2019 16:39Last reply 17 Mar 2019 07:27

DMD

Just wondering if anyone has said no to medication and treated their MS solely with diet? Is it better to take the opinion of "treat as early as possible" or "wait for more progression and then treat" Just trying to get as much info on this so I have all questions prepared for when I next meet w...

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@KrisP

16 Mar 2015 18:24Last reply 2 Sep 2016 13:25

Progressive ms

Sorry for this not sure if it's been mentioned before but for you guys with progressive Ms I read about a drug called MD1003 which appears to be high dose vitamin h, looks good so far, might give some here a lift

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@Stumbler

31 Jan 2013 12:37Last reply 4 Jan 2018 10:19

DLA/PIP Reassessment. (for UK readers)

My MP had a letter of concern about the forthcoming reassessments. here is his reply :- http://www.timloughton.com/hottopics/circular_campaign_responses/item_2013_01_31__03_39_49.htm And, here is my further question to him on the issue:- "I read with interest your response to the constituent, ...

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@f3ng5hu1

12 Dec 2012 15:01Last reply 24 Dec 2012 16:37

Dmd's too early?

Hi all, sorry not been about much just been really busy with the holidays drawing near. I saw a lady Doc at the hospital yesterday for a review. My on and off symptoms have slowed down a lot, my main ongoing problem is my right leg which is decidedly dodgy most days especially when walking any...

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@Graham100

23 Aug 2015 11:26Last reply 28 Aug 2015 16:58

Can't open legs.

I know it sounds strange, but for a while now and it's getting worse, when sitting on chair with feet on floor, my knees are tight together, and the harder I try to push them apart the tighter they get. Even my wife has tried pulling them but no joy. Then one leg starts jumping like twitching and it...

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@chezy17

29 Dec 2018 21:36Last reply 13 Jan 2019 22:50

MS Positives?

Now I know for a that people that post on here, it's about what MS has taken from them, how life has changed and not for the better but not many, if any positives about what MS has given them? Okay, I know it's a crappy illness, I get that but for me, it's given me some positives, okay so I had to d...

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@JamesC83

2 Jan 2021 14:00 EditedLast reply 4 Jan 2021 10:21

Any fitness goals? Interested to hear them

Happy new year everyone 👋 just wondering if anyone has thought about getting fitter in the new year and how you plan to do that given the challenges MS presents?

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@Vixen

27 Jul 2019 12:47Last reply 22 Feb 2021 23:09

Unexpected upside of having MS

Hi all Shifters, I join in with posts quite a lot but don’t write them very often myself. I’ve been diagnosed two and a half years now and it’s been all the usual ups and downs that others seem to go through. One thing I discovered for myself, was that it took about a year to recover and get used th...

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@DominicS

15 Mar 2019 16:02Last reply 30 Jul 2019 16:56

Disabled Persons Railcard - update

We are getting somewhere: I spoke to the Rail Ombudsman just to ask for help about who to talk to they were *very* keen to get involved. If you are interested then read on. I have enclosed my summary for the ombudsman. It is pretty dull if you aren't thinking about a Disabled Persons Railcard. Th...

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@Anawith1n

25 Mar 2015 10:02Last reply 29 Mar 2015 21:04

On Gilenya ( fampyra or lemtrada)

HI it's me again seeing my neourologist on Friday im going to ask him to change my treatment. I'm on Gilenya now for nearly a year. I've just heard about these 2 drugs this week. Fampyra yes it's quite expensive here in Australia but I hear it gives you energy and u can walk better. Lemtrada well I...

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@schjo

17 Jan 2015 14:42Last reply 8 Mar 2015 14:42

Tysabri&lemtrada. Turning down treatment

Hi all, Just checking this site out properly for the first time. Hoping it will help to discuss things with other msers rather than feel kind of isolated with my condition. I also have a decision to make regarding treatment which talking about with others might help. I'm on gilenya which is not ...

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@katfight

30 Jun 2014 17:35Last reply 2 Jul 2014 19:14

shaky head

Hey.. I'm just wondering if anyone has a strange feeling of there head shaking from the inside. I feel like my brain is shaking constantly and I'm not even moving at all.. any advice on how to stop this would be appreciated :)

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@lauraforde

24 Mar 2020 14:25Last reply 2 May 2020 20:29

Coronavirus letters

Can I ask if people under NHS England jurisdiction have received letters/texts today advising they are very vulnerable or if it's just some people? Thanks

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@RachaelLouise

3 Jan 2018 11:20Last reply 8 Jan 2018 19:15

Going to a yoga class next week

Hi I have booked to go to a yoga class next week! Am I crackers? I’m worried as I have balance , dizzy , heavy uncoordinated legs and I’m worried . My Physio said it would help strengthen me so I took the plunge ! But I will prob be only one with something wrong . Now I’m worried . Rachael

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@CheshireCat

15 Apr 2016 16:20Last reply 20 Apr 2016 01:31

Newbie, diagnosed, worried!

Hi all. It's my first post and I'm sort of... shy. I was diagnosed 2 years ago. Had my left eye almost blind and went to ophthamlmologist who decided to ask for an MRI (I told her I had diplopia 10 years before and she had a patient with a similar story that had MS). It was confirmed, so I went to a...

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@hayleyc85

16 Feb 2016 08:25Last reply 31 Jan 2021 15:06

HELP WITH SYMPTOMS

Morning All, below is my story, nobody has offered me any advice other than possible virus or vertigo but thanks to having 3 months with no help i decided to do some research and i've found myself here. Can anyone offer any advice as to if i could have MS and how i get taken seriously? End of Novem...

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@MarkP

9 Oct 2015 09:06Last reply 24 Oct 2015 10:11

Too stubborn for my own good about DMTs?

Hello everyone, I’ve been a member on here since 2008 after my neurologist recommended it to me but haven’t really been involved until now: I know there is not a full on correct answer to this- but I am revisiting the option of DMTs as my circumstances have changed- I’m all ears for any learned opi...

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@gemma81

12 Jan 2015 12:12Last reply 20 Jan 2015 17:18

new to ms in need of friends

Hi to everyone. I'm Gemma, I was diagnosed with MS last April. It started off with the l'hermittes (not sure if spelt right) like a electric shock running down my spine and getting pins and needles in my hands and feet. Well within 3wks I had gone from having that to not being able to walk, I had la...

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@StallionicChampionic

24 Apr 2014 09:53Last reply 25 Mar 2015 04:08

Fampyra (Fampridine)

If you don't know Fampyra is new drug which, has been developed for MS to improve walking speed and nerve conduction in general. I've been taking this for just over a week now and I am to be feeling good affects. Walking is better and I seem to have more energy. I feel a bit like the old me!! Now ...

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@Hayla

4 May 2013 08:25Last reply 14 May 2013 06:35

Fatigue/Exhaustion

Ive been recently diagnosed and have some doubts bout this fatigue issue. Almost everyone I speak to mentions 'periods of fatigue/complete exhaustion. Well Ive been /constantly/ exhausted for the past 18months and most days moving is a chore. I try to go on with my life as per usual but sometimes...

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