#healthy-living - Shift.ms

18 Jun 2022 10:58Last reply 20 Sep 2022 21:37

Ocrevus & progression

For those of you well established on Ocrevus, has it exasperated your symptoms in any way or present anything new? I recently had an infusion following a 7 month delay and am now experiencing bladder incontinence (new), leg tremors (not new, but much worse), a funky eye brow tremor and a general ...

35

@fredtheman68

20 Sep 2022 20:08

Hobbies

Sooo... I use to work a Full time job and a Part time job for the last 30 or so years, working anywhere between 60 & 70 hours a week. Then 2021 BAM...I am down to just 16 hours a week. After the dust settled with a move and SSI, I found myself bored as hell. I wanted a hobby of some sort ( not wanti...

Philadelphia, United States

@Dcms

19 Sep 2022 20:15Last reply 20 Sep 2022 19:37

Tao patches myth or miracle

Hi has anybody heard of or used these, I suffer with severe fatigue balance issues and drop foot in my right leg over the last year. These patches claim to greatly improve these issues,lots of positive reviews about them but sounds to good to be true.

London, United Kingdom

7

@billyshift

28 Jul 2022 09:02Last reply 20 Sep 2022 08:29

Nearing my 30th birthday, what MS has taught me

Hey everyone 👋 This thought has been on my mind for a while and I wanted to get your thoughts too. I turn the big 3-0 at the end of August so naturally, I’m looking back over my 20s and thinking of the future. I’ve been living with MS for over 3 years now and weirdly, the big headline for me is: ...

25

@Chanelle_1

21 Apr 2022 01:58Last reply 20 Sep 2022 00:11

Sleeping issues

For the past few months ive had awful troubles trying to nod off, i have tried sleeping tablets and they work great, but has anyone tried any over the counter medication to help?

Limerick, Ireland

9

@MichaelO

20 Sep 2022 00:10

First time sharing this

My name is Michael I have a job ironically with the same boss I was 19 I want to do something more

@MichaelO

20 Sep 2022 00:10

First time sharing this

My name is Michael I have a job ironically with the same boss I was 19 I want to do something more

@Ireneb74

19 Sep 2022 14:33Last reply 19 Sep 2022 21:30

PPMS and no new lesions

MRI results came back...... no new lesions....... PPMS is a relatively new world for me and trying to get to grips with no treatment is a hurdle I am still being faced with. My mobility is getting worse but only physio and walking aids will see me through. I use a FES, walking stick, ankle straps...

Edinburgh, UK

4

@Vacy

19 Sep 2022 20:28

What’s your experience with the financial side of having MS?

Hi guys! I’m trying to plan and consider the types of things I may need to account for when budgeting for this. Like walking aids, taxis, supplements, personal care (e.g. paying someone to cook and clean for me), acupuncture appointments, etc. Can you share what kinds of things you’ve had to/decided...

@Mills541

9 Aug 2022 21:12Last reply 19 Sep 2022 00:31

Mobility issues

A lot of us are experiencing different symptoms when it comes to multiple sclerosis!! My biggest issue is my mobility/ walking!! What is your worst symptom that you just absolutely hate ?

26

@Robyn20

18 Sep 2022 18:02

Hug and spasticity

Hi guys. I had the hug for over a year and it’s now back on and off I’m also thinking I have spasticity at night I wake needing a wee and once I’m back in bed my legs are just so uncomfortable I don’t know what to do with them and then takes me ages to go back to sleep. Does anyone else find this? ...

@beckifrost21

18 Sep 2022 08:55Last reply 18 Sep 2022 17:11

Daughter recently diagnosed at 15

Hi everyone, so my daughter was fully diagnosed 2 weeks ago, and at the age of 15. Is there anyone else on here roughly around the same age? My daughter came out of hospital, walking so much better and after a few days was walking “normally” but now her balance is all off again, and can’t walk well...

4

@BULLMAN

18 Sep 2022 10:59

Today’s post

Cop- what’s in the bottle? Me-water Cop-sir, that’s wine! Me-jeez,Jesus’ done it again

@Mills541

18 Sep 2022 10:02

New Friends , New endeavors

I am hopeful to the rest of this year being very calm and easy going for everyone ! Whether you are new to this journey or years in !! Feel freee to message me let’s chat !

@nasher27

15 Sep 2022 12:07Last reply 18 Sep 2022 03:22

Vertigo kicking my butt

Ongoing a year not much of a break. Tried stemitil, serc/betahistine, cinnarizine, dephindrate. They help maybe 10% of the time. Tried exercises and relaxing techniques. Feel so useless only work 2days and I've rang in sick after have a bad attack coming out of supermarket. Has anyone found a miracl...

12

@Lubylu

17 Sep 2022 18:22Last reply 18 Sep 2022 03:10

Diet and MS

Hi, I'm new to the group and feel like I have only just found out the truth about what is wrong with me. I was given a diagnosis of rrms over 2 years ago based on my previous history. I was 7 weeks pregnant at the time and a week later we went into the first lock down, I chose to ignore it. I had t...

3

@Szikimario

13 Sep 2022 09:59Last reply 18 Sep 2022 01:11

Hi everyone! I’m new to this site I would like meet with new friends!

I just wonder where could I meet with singles who will understands my illness and will accept it? I’ve tried a lot of dating sites but with not much luck and I don’t want to berry myself just yet, I still can enjoy and share my life with someone and I would like to do so. I refused to take any dru...

3

@caesar2129

17 Sep 2022 23:45

Does anyone else feel like more food, more weight?

The more food is in my bowels, the heavier everything feels. I only time I have ever felt this thing get better is when I flushed my system out COMPLETELY and/or fasted. It's as if constipation is the PRIMARY CULPRIT.

New York, United States

@Mel-N

11 Sep 2022 21:39Last reply 17 Sep 2022 20:02

Tysabri and JC virus

Hi all, is anyone else positive for JC virus and still taking Tysabri? My MS nurse says the risk of PML is the same for the first 2 yrs of tysabri treatment whether you're positive or negative for JC virus. I was only offered tysabri as my treatment (no alternatives were offered) and I've only bee...

Victoria, Canada

9

@FallenAngel

16 Sep 2022 00:28Last reply 17 Sep 2022 19:50

Driving

Does anyone else have a hard time driving? If I set my fight foot in one spot for to long it will get nub and I end up having a hard time moving my foot from the gas pedal. 😱

5

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