#going-out - Shift.ms

31 Dec 2019 15:51Last reply 16 Jan 2020 23:12

Drum Roll for Ocrevus continued...

So the last week and a bit has been pretty s***y by all accounts... Major instability issues along with renewed optic neuritis issues, making walking quite difficult, although "somewhat manageable" but I am stumbling an awful lot & walking drunk even though I've not yet had a drink..lol. Going...

6

@Blagaman182

13 Jan 2020 16:51Last reply 14 Jan 2020 12:09

Overheating.. more like melting!

This is my third post on the subject because it’s changed so much! What started as me feeling rather hot has now turned into my face being visibly red and burning. My whole face feels like I’m leaning into a bonfire. The dr has done tests.. thyroid fine all my bloods fine etc so he basically won’t t...

6

@Stacey_Alexandra_Slade

29 Nov 2019 16:56Last reply 30 Nov 2019 16:58

Toilet Trivia

Hi all, was diagnosed about a month ago, was a shock because we had no idea, only found out cause I got taken into hospital when I woke up and my legs wouldn't work. Anyway, I've always had issues with toileting. I need to wee every 15 minutes or so, I don't get a 'oh I need a wee in a minute' it's ...

5

@Blagaman182

14 Nov 2019 15:41Last reply 18 Nov 2019 09:37

Alcohol tolerance/plegridy.

I have been quite a binge drinker since the age of 16 (going out at weekends etc) and last few years I guess me and my wife will have a bottle of wine each a few times a week. I got diagnosed with ms last year but generally haven’t had too many problems apart from health anxiety. This week on 2 s...

6

@TonyMS47

17 Jul 2019 14:42Last reply 18 Jul 2019 00:07

Heat

The heat and humidity and going to be terrible today. Here in the midwest of the United States. It's going to be around 100° Fahrenheit + We have broken out all the big fans and the air-conditioning so we should be okay. Now I've just got to avoid going outside.

9

@BennyM

26 Jun 2019 07:09Last reply 26 Jun 2019 17:16

Anxiety making me worse

How do you cope with anxiety when going out the door? Every time I step outside anxiety kicks in and my legs stiffen up more and start to spasm. It’s making it really hard for me to go anywhere. When I step out the door the memories come flooding back of me falling over. Was never like this and find...

7

@DominicS

10 May 2019 08:35Last reply 10 May 2019 09:36

Making a walking stick - experience?

Morning. I have started to have a stick on standby for going out. It is more of a balance than a load-bearing thing. Being an ex-cyclist who likes light, blingy carbon fibre things I decided to go for a carbon stick. Not bloody likely as they are 60+ quid. All black, as subtle as I can make it. No...

1

@Ann_Findlay

15 Apr 2019 15:51Last reply 17 Apr 2019 08:39

Ms relasping remitting

I was diagnosed with MS 2 years ago when I was 56 in 2016. I saw a neurologist once! Apparently he can't see me as he is only seeing "The newbies" We only have one neurologist in Plymouth! My MS nurse is really not much help as she hasn't helped me much at all! I went on Steroids for my first relaps...

3

@RiaM

21 Nov 2018 15:11Last reply 22 Nov 2018 02:46

Hospital again

OMG here I am again, hospital,physio I've always hated the places the smells the lights the sick people the noises just like being on a bus and why is everyone here old God, is this my future? screw u I'm not going out like that! And the song going round I. My head is...there's no place Id rather b...

7

@FXMS

7 Nov 2018 06:05Last reply 14 Nov 2018 05:49

Empty

Hello Shift.MSers. I was diagnosed with early PPMS (male, 28) in july, 4 months after breaking up with someone I still love. The break up was slow, painful, emotionally violent. Today I went for a drink with this person, mostly to share my MS diagnosis and my treatment plan with a newly approved...

14

@ZoeB

28 Oct 2018 06:12Last reply 30 Oct 2018 11:37

Doing something new

I was recently advised by my neuropsychologist that I needed to go and get a new hobby, not be afraid to connect with people and try something new. MS has definitely taken away a lot of my confidence, assisted in me losing friends, and made me someone who stays in rather than being social. So... I ...

10

@merfield

18 Sep 2018 10:40Last reply 20 Sep 2018 07:17

Buy a WAV or rent?

I haven't been on shiftms for a while as lots has been happening..... One of the things has been the option to either BUY or RENT a Wheelchair Accessible Vehicle. 'Fors' for owning: availability 24/7 for visiting my partner in a nearby care home and picking sunny days for going out whenever I want ...

10

@gemstemple

25 Jul 2018 21:39Last reply 26 Jul 2018 13:23

Coping with the heat

Hi I’m very new to this, this actually being my first time properly on the site not to mention posting. I know that lots of MSers suffer with extreme heat and I seem to be no exception. Walking to the top of the street can leave me looking like I’ve just got out of a swimming pool I’m literally dri...

7

@pikilily

17 Jan 2018 07:26Last reply 17 Jan 2018 14:20

What a day yesterday was!! Stress!!!

Yesterday was one of those days. In the morning I went with my husband to the hospital to receive the news that he has prostate cancer. Then home, a quick turnaround to go to a friend's funeral. Very sad lose of a really special person to cancer. ( It was a wonderful funeral, with loads of us playi...

10

@pikilily

7 Dec 2017 06:02Last reply 7 Dec 2017 13:04

First Proper MS Nurse appointment

Hiya, I have now got my first proper appt for the MS Nurse next Wednesday. (which happens to be at exactly the same time as my OH has his prostate biopsy- such fun !!, luckily we will both be sitting in the same waiting area, LOL) I would like to ask people what questions they covered at their firs...

6

@anxious123

22 Jul 2017 09:33Last reply 25 Jul 2017 16:04

Daily living...

I am trying to get into managing symptoms...not diagnosed yet but well on way...i have fatigue and feel generally headachy on a daily basis. I have slowed down tried to rest and take naps etc. It is starting to prevent me going out with my kids for more than 2hrs and with school hols here we are lik...

7

@Bolanle_Ayekoti

8 Jun 2017 17:35Last reply 8 Jun 2017 19:28

little mix

going out party cimen thank you very good nice one play game facebook have

2

@londonlad

7 Jun 2017 15:23Last reply 8 Jun 2017 14:25

First relapse and diagnosis, worried.

Dear all, I am a male 33 old year old. 3 months ago; unaware of what was about to happen,one day I felt off balance and within a week was hospitalised. The balance issues were accompanied with nystagmus causing double vision. I also had Horrible vertigo and vomiting even when drinking water. Of ...

13

@Andy365

14 Mar 2017 18:23Last reply 14 Mar 2017 20:42

Hug or not to hug this is the question?

Hi everyone I could do with your wisdom please. I have been in pain now for 2 weeks with abdominal pain/rib/back. I have pain to the right of belly button and under my right rib cage. The pain radiates through to my back at exactly the same place as the front. I also get very bad pain under my sho...

2

@marydev

19 Dec 2016 21:18Last reply 1 Mar 2017 11:48

coccyx pain

Hi all i am going outof my mind with coccyx pain nothing is hitting it it comes for a few weeks and goes and comes back brutal in siting down but its there the whole timeun lying ,standing i know there is mixed views on weather this is ms related or not i am on strong meds gambetin high dose ps bac...

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