#diagnosis - Shift.ms

23 Dec 2020 10:46Last reply 28 Dec 2020 20:55

Dealing with people's responses to a new diagnosis of RRMS

(UK) Hi all! First time poster :) I just got diagnosed with what we think is RRMS - I'm waiting for a contrast MRI and an appointment with the MS specialist consultant at some point in the new year to discuss treatment options and get a better sense of where we're at. Luckily right now my symptoms ...

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@kateybash

8 Jun 2017 06:10Last reply 8 Jun 2017 17:51

CIS Diagnosis. Any advice?

Hi folks, Well saw my neurologist yesterday who diagnosed CIS transverse mylitis. I am grateful to at least have some sort of diagnosis but feel totally overwhelmed and very low today...never slept at all last night. She has changed my drugs from pregabolin to duloxetine but no mention of a DMD. I n...

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@croydepixie

6 May 2017 19:06Last reply 8 Jun 2017 06:24

Diagnosis.Military.Children.Treatment?

It's been a whirlwind... August 2015....Mother is numb down her left side, I take her to the GP as it's weird. She's diagnosed with MS after a couple of weeks (what is this thing, we have no idea, quick google, oh right great) March 2016....We all go on a family holiday and after a swim I'm numb d...

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@emski76

18 Jan 2017 19:39Last reply 20 Jan 2017 08:26

Diagnosis correct?

Hi, I'm Emma and was diagnosed in October 2016. I had experienced a feeezing sensation in my face which progressed to my arm and leg. All left side. I thought it was a trapped nerve as I have problems with my shoulder and neck on that side. I was referred to a neurologist by my GP and she in turn se...

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@motherofchaos

4 Oct 2016 06:50Last reply 20 Oct 2016 21:15

Delayed emotional response to diagnosis

Hi. First post. I have RRMS diagnosed 5 years ago but have only just started taking Plegridy. I'm finding it very tough emotionally. My neurologist told me to "complete my family" before commencing medication. So I think I've been so busy doing just that, that I've kind of ignored the fact that I ha...

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@tess

22 Jul 2016 01:26Last reply 25 Jul 2016 21:35

Overwhelmed with diagnosis

Hi, This is quite long so I do apologise haha Ok, so, I was officially diagnosed with RRMS late 2015, but had been waiting for a diagnosis since I first went into hospital in 2013 at 18 with numbness and tingling from my chest down. Ever since the official diagnosis I have been struggling to come to...

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@Gazmaster3D

10 Jun 2016 21:32Last reply 13 Jun 2016 07:32

MS diagnosis really hit home today

This is going to be a long one. I was diagnosed with RRMS just over 2 weeks ago but have suffered with the symptoms for the last 3 years and just got on with things. Being 33 I lived in ignorance and just got on with it. Bladder, sexual issues and ''brain fog'' problems I put down to my headonisti...

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@WoolPhotos

29 Jan 2019 23:56Last reply 30 Jan 2019 21:20

New diagnosis and new relationship

Hello everyone. I’m new here. I’ve read some threads similar to my current dilemma but wanted to throw out my story if anyone else is feeling lost like me or has any advice. I had, what turned out to be my second episode/flare up, only a month after dating this guy. Over two more months of dating, ...

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@niteowl

22 Nov 2018 15:26Last reply 1 Dec 2018 21:45

Diagnosis advice

Hey wondering if you helpful folks can give me some advice please, sorry if this post may be a bit long. I have had a lot of symptoms of ms and finally got to see a neuro in January last year had a spinal mri and it came back clear. My hips and legs are so sore I have numbness in my toes and at ni...

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@Hope7741

16 Jan 2020 09:12Last reply 17 Jan 2020 10:59

New Diagnosis

Hi everyone, I just joined this platform as I am struggling with my new diagnosis. I was diagnosed last year just under a month before my 18th birthday. My mum also has MS and was diagnosed in September 2007. I wanted to ask if anyone has any tips with dealing with new symptoms and how to overcome ...

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@markbacon

2 Jul 2018 15:41Last reply 3 Jul 2018 09:06

Diagnosis

Hello All ! I am new to this site. I saw my ,G.P. Last week to discuss my symptoms and he has referred me to see a neurologist. It's a seven month wait, although I called for my appointment and I am there in the beginning of November. The thing is I have just started with another symptom that may be...

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@iain34

18 Jun 2018 19:14Last reply 19 Jun 2018 06:51

Mri scan 1st since diagnosis

Got a MRI scan tomorrow after a bit of a wait for one. This will be my 1st one in 2 years since the original diagnosis overall I think I have been ok but I have a good high pain threshold so will be interesting to see the results. Am on tecfidera still have hot flushes especially after the 2nd table...

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@Emmanuttall10

9 Oct 2020 10:21Last reply 12 Oct 2020 09:50

New diagnosis

Just wondering how people coped with a confirmed diagnosis. I’m currently feeling quite low at the moment but happy to finally know why I feel so awful all the time. Anyone else feel like this?

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@petal87

7 May 2017 07:14Last reply 13 May 2017 16:20

Diagnosis with no relapses

I was diagnosed a few months and was very fortunate to be offered Lemtrada. I had my first attack two years ago which came out of the blue. The right side of my body was affected, I couldn't move my arm, that side of my face, my leg was a bit wonky and my speech was very slurred and I also had a s...

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@Sarah1972

15 Mar 2017 10:35Last reply 15 Mar 2017 19:06

DVLA and CIS diagnosis

Morning...Just a quick question..Can anyone offer advice on informing DVLA and insurance(car) after my CIS diagnosis! Do I need too??? Sarah.

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@Kinga

2 Dec 2016 11:35Last reply 4 Dec 2016 18:08

Undergoing diagnosis - New here!

Just wanted to say HI and thanks a lot for this website and wonderful people in the forum! It helps a lot to read all the stories and knowing im not the only person in the world facing this kind of problems Im currently undergoing a diagnosis and freaking out! Not sure yet if its MS or a single ep...

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@aimeemcw0505

23 Jul 2016 03:36Last reply 29 Aug 2016 14:45

1st relapse since diagnosis

I was just diagnosed in November and have just had my first relapse since then. It started with a feeling of water running down my legs and some numbness. Ive now got this horrible feeling through both my legs which I can only describe as both legs 'buzzing' (I know this sounds ridiculous)., so unco...

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@satsuma

4 Dec 2015 18:28Last reply 4 Dec 2015 22:58

After diagnosis

Hi all. After you're diagnosed with MS do you get sent regular neurology appointments? Or is it just if you're not well? I only ask as I was diagnosed in March, since then I've not really heard anything from anyone. Kind of feel like I've been thrown in the deep end and left to drown :-/ Thanks x

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@Sonia1984

4 Dec 2015 17:45Last reply 5 Dec 2015 16:21

Symptoms before diagnosis?

I have had weird symptoms for ten years prior to diagnosis. I know MS is notorious for not being diagnosed or thought of right off the bat. Has anyone else had symptoms for years before MS was even thought of? What type of symptoms did you experience and did you find you received every diagnosis in ...

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@sparkle

3 Dec 2015 02:30Last reply 8 Dec 2015 20:32

Waiting in Limbo for Diagnosis

Hi! I'm new to the site and waiting in limboland for a diagnosis. I'll have a follow up appointment with my neurologist in January, who I saw for the first time about 10 days ago after ending up in emergency twice in early November. I have an MRI in 3 weeks. For the last month, I've had tingling in...

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