I’m a shift community member and in my day job I’m a psychology researcher. I am currently involved in an application to the MS Society for a new research project aiming to develop an intervention to support couples where one partner has MS. As part of the application we’d like to show that we have had the input of members of the MS community so I wondered if I could get your opinions?
The project intends to conduct an online survey and interview adults with MS and their partners in order to identify the key issues couple are dealing with. We will then use this information, as well as input from a group of MSer and partner advisers, to develop some online tools. These new tools will then be tested in order to check they are useable and helpful and to collect support (or not) for a larger trial.
We’d gladly hear any thoughts on this proposed project but in particular we would like to ask:
– Do you feel that the impact of MS on relationships is an issue that is not currently given enough attention?
– Do you think people with MS and their partners would be interested in this?
– Would people with MS and their partners be likely to access such an online intervention together?
– Are there any particular topics that you think should be covered in the intervention?
– Do you foresee any problems?
At this stage we are simply seeking your general thoughts on the subject, not asking about your own relationships, but if you would feel more comfortable sending me a direct message rather than posting here then please feel free to email me on [email protected]. I will share the content of your comments with the project team and some quotes may be included in the grant application but your contributions will remain completely anonymous and confidential.
Many thanks for taking the time to read this,
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