tpeters 02/02/18
Last reply 5 months ago
What's the deal?

Hello, I’m new to the site, diagnosed 2015 RMS just started on copaxone. I am starting to get a little freaked out.

I really don’t have anyone to talk to, don’t really say much at work, and my family is in denial, lol….you look great mom, don’t worry!

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stumbler
5 months ago

Hi @tpeters and welcome.

Your comments will resonate with most of us. Our families and work colleagues just don’t have enough knowledge of MS to empathise with us properly. We have to try and educate them, but “you can lead a horse to water……….”!

MS is an invisible condition as we can look great, but we’re hurting inside.

Hopefully, your requirement to regularly inject yourself may change some perceptions. That’s if anyone knows about this!

It’s this feeling of loneliness and the void it creates. And, this is where this Forum comes in. You don’t have to explain your feelings as we already understand. You can ask questions or just relieve some of your frustrations by having a good rant.

So, allow us to “un-freak” you………… 😉


lilbird
5 months ago

Hi there @tpeters & welcome 🙂

Don’t worry & freak out, bring all your questions & off load your crazy here, you’ll be in good company 😉


nutshell88
5 months ago

Hehehe i liked that one about family after 13 years and altho dad took me to MRI hundrand of time he still says no your brain has no lesion your brain is fully healthy.
But in 2005 i saw he shed s tear in hospitavwhen drs told him i have MS. But i didnt know till after 5 years he kept it a secret bot to get me worried and MS never cause me any relapses i meanvyears passes between a relapse and another.

Dont worry about NS its not that scary .
Worrying about it is ubgealthy i mean can not 😉 live your life to the fullest it cant stop you.


edmontonalberta
5 months ago

@tpeters

Maybe I shouldn’t mention this – your post made me chuckle.

Whenever I get told I look good I always respond “Of course; I am Dam* good looking – but that’s not the problem…”

The challenge we face is that if we were missing an arm, people would see it. But most of us look whole so everyone believes we are okay. And if we mention what is going on, few will believe us.

I follow the philosophy that 90% of people do not care about our challenges; the other 10% are glad we are having them. So I hardly ever mention them. What I do is let those it impacts know about my limitations. No complaints – just state facts; those who care will assist – those who do not just need to stay out of my way…

So yes, feel free to drop by & ask questions. Vent if need be; some of us know exactly what you are going through…


tpeters
5 months ago

Wow just wow, thank you all so much. Now, back to what’s the deal? Although diagnosed in 2015, my neuro thinks I may have had it for a while. Lately I have had some additional symptoms, soooo I don’t know what’s to become of me, oh and I’m 60 years “young”.


edmontonalberta
5 months ago

@tpeters

I just turned 61; was diagnosed at 60. I guess the symptoms appeared about 4 years ago. My supervisor kept telling me to quit dragging my feet when I walked; I thought it was because my steel-toed boots were heavy.

No big deal – I just adjust certain things. I.e. my diet; make sure I have easy access to a washroom, etc… Overall my life is good.


stumbler
5 months ago

@tpeters , try not to worry about the future. It’s going to happen anyway…..

But, the whole MS landscape has changed over the last 20 years and is still changing. MS is now a manageable condition, with many therapies now available and more in the pipeline.

So, don’t spend your entire life worrying about things that may never happen. 😉


vixen
5 months ago

Hello @tpeters, I can resonate with a diagnosis at a more ‘mature’ stage of life. Being further down the line has its own set of challenges, that’s for sure. Having Shift is great, like having a friend you can consult at any time, day or night, as someone somewhere in the world be around. Hope you are doing OK today! X


bellecaspar
5 months ago

I’m 56, diagnosed 18(ish) months ago. Looking back, I now know what so many of my problems were caused by. I used to be a runner – nothing so glorious an early morning run on a deserted beach! Knee went – diagnosed by ‘specialist’ with cartilage probs – operation – I’ve never been able to run again. More than anything, it’s the depression caused by thinking ‘I’ll never be able to to that again’ ….


cameron
5 months ago

@bellecaspar, ‘me too’! No squash, tennis, fell-walking or Scottish country dancing. But instead, swimming, Pilates/yoga, gym, cruising and serious cooking. Enough good things to make the glass half-full. The difficult thing is to start ‘the journey of alternatives’….. but it has to be done.

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