So I just got a call from my MS nurse to tell me my MRI showed no new lesions on my brain, but still showed the large (what she called severe) ones from my MRI over a year ago. For the last 3 months I’ve gone through hell with back pains, spasms, shaking, stomach pains, eye pain and the list goes on and on. They are classing this as Radiologically Isolated Syndrome again, making this the fourth “isolated” incident I’ve had. They’re not concerned because my MRI is fine, so they’re waiting a month to see me to even discuss the possibilty of treatment, rather than seeing me ASAP. Are they only concerned about MRI results and not the physical manifestations of MS that I’m having. Will I only be given the correct treatment once I’ve had my 10th relapse and the MRI also shows new lesions? Can they start me on treatment without an MS diagnosis? Because if not, that’s mighty unfair, considering I’m experiencing so much uncomfort.
So, what exactly does it take to get an MS diagnosis? Will they not diagnose me unless my MRI shows new lesions despite me having relapse upon relapse or is there a certain number of “isolated incidents” that they say enough is enough this poor sod has MS. This has all gotten very confusing now, because if they’re saying it’s not MS then what the hell is causing all these problems?
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