I had my most recent flare up in last few weeks but was in the US at the time for two weeks, I live in the UK. I went to emergency clinic on the advice of my friends wife who is a Neuro, they live in US, they doc at clinic suggested low dose steroids (oral) to see if it helped; they seem to help somewhat, however it did not fully recover on my return to UK. I was keen to see my own Neuro as soon as possible after return as I wanted to see if anything could be done for residual symptoms but also get MRI to see where I am at in general at this juncture.
I have been fortunate enough to have health insurance up until now and managed to put all my outpatient treatment through the insurance since late 2015, about half a dozen consultations and 3 MRIs. Never really had to use insurance before or the NHS for that matter, other than local GP for minor issues. I decided this time I would give the NHS route a go to test the waters and see what the protocol is for the future as my insurance cover will cease shortly.
My experience with NHS to say the least has been a nightmare, without going into details, just chasing down the progress of a referral was a nightmare and finally when my appointment came through, it is 6 months away; this is just appointment no MRI ! This process took nearly three weeks to get the appointment; needless to say after nearly two weeks of chasing I decided enough was enough and just went through the insurance and got an appointment within a week, after just one phone call. So with respect to the NHS and peoples, experience is this normal? – is there a different route to follow for MS relapse where your concerned of immediate damage; its very worrying for the future….
It just got me thinking, for folks in the UK, what do people do when they have a significant relapse and are concerned that if they don’t get immediate attention they may have permanent damage assuming you don’t have good insurance cover and rely on NHS ? I know sometimes or possibly most of the time they cannot do a lot, but steroids can be helpful sometimes and more generally just getting a follow up to see how your progressing at the time of the relapse and what the immediate future might hold in a timely matter is important, e.g. if you want to start drugs (if not on them).
Any thoughts appreciated..
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