Last reply 5 months ago
What digital services do you use?

Hi all,

We’re really keen to understand how MSers use digital services to manage their MS; what works well, what doesn’t, what you think is missing and what barriers there are to getting what you need. We’re working with Salford Royal NHS Foundation Trust (hospital in the UK) and Clever Together (online workshop) to capture your insights and help place you at the centre of digital support.

We would like you to add your voice to the conversation, vote on other peoples comments, put forward ideas and share your views on the past, present and future of digital services in managing your MS. Contribute as much or as little as you like from today for the next couple of weeks. Click here to join:

These conversations will help organisations working in MS to focus on the services that you find most useful and develop new services that will be valuable to MSers.

We look forward to hearing your views. Please comment away over the next few weeks on the link above.


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6 months ago

@gpeps Hi the link doesn’t work, only using a phone so it might be me.
But that’s one thing to look at I suppose.
Keep smiling

6 months ago

The link works for me…

See if this works any better:

6 months ago


I have an Android telephone.

I use a medication tracker app called MyTherapy to remind me what to take and when. Especially helpful as there is one med I have to take every other day.

I have recently downloaded two sysmptom diary apps but haven’t really delved into them and am reasonably asymptomatic at the moment so I am saving them!

They are:
MS Notes Journal
MS App (sponsored by Ashford and St Peter’s Hospitals – NHS)

6 months ago

Thanks @dominics – it would be ace if you could share these thoughts on the link above if you have a moment. We are directing traffic there from multiple sources over the next few days so would be great to have your voice in the discussion.

Thanks very much

6 months ago

Ahead of you, Sir!

6 months ago

Sounds interesting!

5 months ago

There is still time to add your thoughts, ideas, and votes.

For example, how about Skype consultations or easy to share digital care plans? How can those who support MSers be more proactive in how they use digital services to support you?

Share any innovative ideas you have with us, use the link below to get involved in the conversation:

Join to reply to this post.

Become part of the community so you can chat, compare and learn from other MSers.